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I take Stalevo 100 (post DBS) and took it pre DBS as well. Stalevo 100 is a combination of a Sinemet 25/100 and 200 MG of Comtan. I've never had a problem with Stalevo, it's just one pill instead of two ... and comes in stronger dosages, as well, if you need more Sinemet (Carbidopa/Levadopa). ----- Original Message ----- From: "PATTI ZAPF" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, October 22, 2009 4:17 AM Subject: Re: request for info about Stalevo > Esther: > are you feeling like a guinea pig? stalevo is the combo drug right? > alan tried it and he didn't adjust well and went back to carbidopa 25/100 > 4 x day, comtan 200mg 4x day, and amantadine 100 mg 3x day. the > amantadine causes nightmares and he pulled back one dose, from 4pills to > 3 and that helped. he first went off the amantadine and he really slowed > down, so he realized he needed it. new doctors, what a pain! another > pain, is therapist's trying to do a good job and telling the patient > this, this, and this is what most likely is going to happen down the > road. many seem to forget how strong the subconscious mind is and > planting a seed of worry is a terrible thing, for something that may > never occur, even if it does, let it be known then, not beforehand. but > all this knowledge they have to share... errrrrrrrrrrrrrrrr. > > kind regards, > patti > > > On Oct 22, 2009, at 1:40 AM, rayilynlee wrote: > >> Esther >> >> I tried Stalevo after my DBS and it didn't help me, but then NOTHING >> does. Sinemet worked on first dose, but never again. I thought it and >> Comtan both contained carbo/levadopa. Either Comtan or Stalevo gave me >> strange abdominal "twitches" >> >> Ray >> >> Rayilyn Brown >> Director AZNPF >> Arizona Chapter National Parkinson Foundation >> [log in to unmask] >> >> -------------------------------------------------- >> From: <[log in to unmask]> >> Sent: Wednesday, October 21, 2009 1:08 PM >> To: <[log in to unmask]> >> Subject: request for info about Stalevo >> >>> My husband has been prescribed Stalevo (he has late-stage Parkinsons.) >>> A >>> new doctor has taken away his long-time drugs: mirapex, Sinemet CR >>> (ER) >>> and is gradually removing his carbidopa/levodopa. These meds changes >>> have >>> brought a quite rapid deterioration on all fronts. >>> I'm interested if anyone has any experience with Stalevo, positive or >>> negative. If so, could you write about it on this list-serv.. >>> I haven't posted in some years-- the list-serv appears to have been >>> hi-jacked by politics and perhaps there is no one on it any more who is >>> concerned about these actual Parkinsons clinical issues. Anyway, if >>> there still >>> is, could you post? >>> Thanks, >>> Esther >>> P S, also if anyone has found a more helpful on-line community, could >>> you >>> post the address for that as well? >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn