 |
 |
John I think you are just being realistic, I don't think there will be a "cure" in my lifetime either, but we need to push for it. It gives me something to do while I wait to die. Since I don't know when that will be, I want to do all I can to help myself. You've perhaps heard the saying "if I had known I was going to live this long I would have taken better care of myself". Since I can barely walk I don't think I will be competing in any sports events, but will keep on pedaling, just because it can't hurt. DBS in 2003 has controlled my tremors. Ray Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "john thomas" <[log in to unmask]> Sent: Wednesday, October 28, 2009 12:51 PM To: <[log in to unmask]> Subject: Re: Exercise & PD > Personally I don't think there will be a "cure" in my lifetime. > I have had the dbs surgery and am "cured" of major symptoms. I need to > work > o n my speech, my balance and my bike riding. In fact I wish I could ride > for 3-4 hours per day then I could enter the Hawaii iron man team's event > The simple fact is this is a disease of unknown etiology. As a consequence > it gets umbrella diagnosis. > Until the origins are truly y found which is most probably a genetic > breakdown rather than a genetic hereditary trait, there will be no" cure > ". > Not to say the origins of the disease won't be found when the human genome > project finally makes sense, just that the cure may be worse the disease. > I don't wish to be so negative on this but when everyone begins to > realizes > that the symptoms relief is th best we have at the moment from > degenerative process then he better weal will be roach this dieses with > the focus on quality of life rather than a simplistic notion of disease > therefore cure approach. > So I would say to you keep up the good work and plan on the Hawaii ironman > event. > John Thomas > BAPS MEDICAL RADIATION > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of rayilynlee > Sent: Tuesday, October 27, 2009 7:04 PM > To: [log in to unmask] > Subject: Exercise & PD > > I've gotten my forced exercise of cycling up to 3 and 4 hours a day with > no > improvement in symptoms after 3 months; however I've managed to lose about > 5 > lbs. This University of Pittsburg study claims great promise for exercise > as PD treatment. I'm kinda hooked on it as I can watch TV and do it. > > What think you Dr. Chu? > > Ray > http://www.barchester.com/Healthcare-News/New-Parkinson's-breakthrough-is-%2 > 2tantalising%22/376/3062 > > > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn