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In a message dated 11/3/2009 12:00:43 A.M. Eastern Standard Time, [log in to unmask] writes: There are 8 messages totalling 599 lines in this issue. Topics of the day: 1. Exercise & PD 2. (no subject) 3. Fwd: FW: Extraordinaire Instrument (3) 4. Newbie's introduction (3) ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- Date: Sun, 1 Nov 2009 16:23:25 +0500 From: Haroon Basheer Shaikh <[log in to unmask]> Subject: Re: Exercise & PD Dr chew ray, have had two 45 min sessions with an ehergy healer feeing light and face relaxed. Any experience anyone pl share Haroon Basheer On 11/1/09, rayilynlee <[log in to unmask]> wrote: > I agree totally. > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > -------------------------------------------------- > From: "chew nee kong" <[log in to unmask]> > Sent: Thursday, October 29, 2009 9:59 PM > To: <[log in to unmask]> > Subject: Re: Exercise & PD > >> Dear Ray >> >> Just like other treatments of PD (e.g. medications), the benefit of >> exercise in PD is difficult to prove. On the other hand, there is no >> evidence that exercise does not help in Parkinson's. >> >> For a progressive illness such as PD, absence of improvement does not >> necessarily mean that the treatment (e.g. exercise) is not effective. The >> very fact that the condition has stabilized or the deterioration is slower >> >> is already suggestive of a positive benefit of a treatment. >> >> Yes, the cure for PD will not arrive so soon. You have the right >> attitude - while you are still alive, you make the best of whatever you >> have in life. And all of us should do our best to make life better for >> others who suffer from PD. >> >> All of us should remain hopeful - it doesn't hurt to keep this hope alive. >> >> Dr Chew >> >>> Date: Wed, 28 Oct 2009 23:24:21 -0700 >>> From: [log in to unmask] >>> Subject: Re: Exercise & PD >>> To: [log in to unmask] >>> >>> John >>> >>> I think you are just being realistic, I don't think there will be a >>> "cure" >>> in my lifetime either, but we need to push for it. It gives me something >>> >>> to >>> do while I wait to die. Since I don't know when that will be, I want >>> to >>> do all I can to help myself. You've perhaps heard the saying "if I had >>> known I was going to live this long I would have taken better care of >>> myself". Since I can barely walk I don't think I will be competing in >>> any >>> sports events, but will keep on pedaling, just because it can't hurt. >>> DBS >>> in 2003 has controlled my tremors. >>> >>> Ray >>> >>> Rayilyn Brown >>> Director AZNPF >>> Arizona Chapter National Parkinson Foundation >>> [log in to unmask] >>> >>> -------------------------------------------------- >>> From: "john thomas" <[log in to unmask]> >>> Sent: Wednesday, October 28, 2009 12:51 PM >>> To: <[log in to unmask]> >>> Subject: Re: Exercise & PD >>> >>> > Personally I don't think there will be a "cure" in my lifetime. >>> > I have had the dbs surgery and am "cured" of major symptoms. I need to >>> > work >>> > o n my speech, my balance and my bike riding. In fact I wish I could >>> > ride >>> > for 3-4 hours per day then I could enter the Hawaii iron man team's >>> > event >>> > The simple fact is this is a disease of unknown etiology. As a >>> > consequence >>> > it gets umbrella diagnosis. >>> > Until the origins are truly y found which is most probably a genetic >>> > breakdown rather than a genetic hereditary trait, there will be no" >>> > cure >>> > ". >>> > Not to say the origins of the disease won't be found when the human >>> > genome >>> > project finally makes sense, just that the cure may be worse the >>> > disease. >>> > I don't wish to be so negative on this but when everyone begins to >>> > realizes >>> > that the symptoms relief is th best we have at the moment from >>> > degenerative process then he better weal will be roach this dieses >>> > with >>> > the focus on quality of life rather than a simplistic notion of disease >>> > therefore cure approach. >>> > So I would say to you keep up the good work and plan on the Hawaii >>> > ironman >>> > event. >>> > John Thomas >>> > BAPS MEDICAL RADIATION >>> > >>> > -----Original Message----- >>> > From: Parkinson's Information Exchange Network >>> > [mailto:[log in to unmask]] On Behalf Of rayilynlee >>> > Sent: Tuesday, October 27, 2009 7:04 PM >>> > To: [log in to unmask] >>> > Subject: Exercise & PD >>> > >>> > I've gotten my forced exercise of cycling up to 3 and 4 hours a day >>> > with >>> > no >>> > improvement in symptoms after 3 months; however I've managed to lose >>> > about >>> > 5 >>> > lbs. This University of Pittsburg study claims great promise for >>> > exercise >>> > as PD treatment. I'm kinda hooked on it as I can watch TV and do it. >>> > >>> > What think you Dr. Chu? >>> > >>> > Ray >>> > http://www.barchester.com/Healthcare-News/New-Parkinson's-breakthrough-is-%2 >>> > 2tantalising%22/376/3062 >>> > >>> > >>> > >>> > Rayilyn Brown >>> > Director AZNPF >>> > Arizona Chapter National Parkinson Foundation >>> > [log in to unmask] >>> > >>> > ---------------------------------------------------------------------- >>> > To sign-off Parkinsn send a message to: >>> > mailto:[log in to unmask] >>> > In the body of the message put: signoff parkinsn >>> > >>> > ---------------------------------------------------------------------- >>> > To sign-off Parkinsn send a message to: >>> > mailto:[log in to unmask] >>> > In the body of the message put: signoff parkinsn >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> _________________________________________________________________ >> New Windows 7: Find the right PC for you. Learn more. >> http://windows.microsoft.com/shop >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > -- Sent from my mobile device Best Haroon Basheer ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Sun, 1 Nov 2009 14:59:34 EST From: Jim Finn <[log in to unmask]> Subject: (no subject) commands ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 2 Nov 2009 00:36:34 GMT From: "[log in to unmask]" <[log in to unmask]> Subject: Fwd: FW: Extraordinaire Instrument Non PD. This is really amazing....A friend described it as "your brain = on music" = Turn your sound on for this. Read this first, then watch. This is alm= ost unbelievable. See how all of the balls wind up in catcher cones. = = = = This incredible machine was built as a collaborative effort between the = Robert M. Trammell Music Conservatory and the Sharon Wick School of Engi= neering at the University of Iowa .. Amazingly, 97% of the machines comp= onents came from John Deere Industries and Irrigation Equipment of Bancr= oft , Iowa ..Yes, farm equipment! = = = It took the team a combined 13,029 hours of set-up, alignment, calibrati= on, and tuning before filming this video but as you can see it was WELL = worth the effort. = = = It is now on display in the Matthew Gerhard Alumni Hall at the Universit= y and is already slated to be donated to the Smithsonian. = ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Sun, 1 Nov 2009 08:44:44 -0500 From: Jennifer Gaudio <[log in to unmask]> Subject: Newbie's introduction Hello all=2C=20 =20 My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October 1= 4th. I'm doing fairly well as I suspected it for a while and had time to pr= epare. I've been experiencing tremors=2C muscle weakness=2C spasms and rigi= dity in my left side since 2007. The diagnosis got confused as the worst sy= mptoms popped up after I had tendon repair surgery on both my legs. It seem= s tremors run in my family--seven have them all ranges of age--but I am the= first to knowingly develop into pd. I'm working on participating in some s= tudies. I figure if I can help someone else down the line it may be worth i= t.=20 =20 I'm in the research and planning stages. I think that's where most of my fr= eakout energy is going. I found out about this listserv from "When Parkinso= n's Strikes Early" and here I am. I'm most interested in how to maintain so= me normalcy while losing independence as it progresses (I'm single and like= ly staying that way) work and ADA issues (I'm a museum curator) and anythin= g that may help slow progression and keep some level of fitness (brfore the= surgery I was a yoga and tai chi student and loved swimming). =20 As a newbie I'm grateful that this listserv exists=2C thank you to all who = developed and support this resource. =20 Best=2C Jen =20 _________________________________________________________________ Hotmail: Trusted email with Microsoft's powerful SPAM protection. http://clk.atdmt.com/GBL/go/177141664/direct/01/ http://clk.atdmt.com/GBL/go/177141664/direct/01/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto :[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 2 Nov 2009 01:17:48 -0700 From: Sami <[log in to unmask]> Subject: Re: Fwd: FW: Extraordinaire Instrument You forgot to send the URL so we could watch it.=0D Sami=0D =0D -------Original Message-------=0D =0D From: [log in to unmask] Date: 11/2/2009 12:05:25 AM=0D To: [log in to unmask] Subject: Fwd: FW: Extraordinaire Instrument=0D =0D Non PD. This is really amazing....A friend described it as "your brain = on music"=0D =0D Turn your sound on for this. Read this first, then watch. This is almo= st unbelievable. See how all of the balls wind up in catcher cones.=0D =0D This incredible machine was built as a collaborative effort between the Robert M. Trammell Music Conservatory and the Sharon Wick School of Engineering at the University of Iowa .. Amazingly, 97% of the machines components came from John Deere Industries and Irrigation Equipment of Bancroft , Iowa ..Yes, farm equipment!=0D =0D It took the team a combined 13,029 hours of set-up, alignment, calibratio= n, and tuning before filming this video but as you can see it was WELL worth the effort.=0D =0D It is now on display in the Matthew Gerhard Alumni Hall at the University and is already slated to be donated to the Smithsonian.=0D =0D ----------------------------------------------------------------------=0D To sign-off Parkinsn send a message to: mailto:[log in to unmask] =2Eca=0D In the body of the message put: signoff parkinsn=0D =0D ____________________________________________________________=0D =0D =0D No virus found in this incoming message.=0D Checked by AVG - www.avg.com=0D Version: 8.5.423 / Virus Database: 270.14.44/2475 - Release Date: 11/01/0= 9 19:39:00=0D =20 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 2 Nov 2009 10:53:21 +0200 From: Nic Marais <[log in to unmask]> Subject: Re: Fwd: FW: Extraordinaire Instrument It's nonsense anyway... See: http://www.snopes.com/photos/arts/musicmachine.asp Nic 57/15 On Mon, Nov 2, 2009 at 10:17 AM, Sami <[log in to unmask]> wrote: > You forgot to send the URL so we could watch it. > Sami > > -------Original Message------- > > From: [log in to unmask] > Date: 11/2/2009 12:05:25 AM > To: [log in to unmask] > Subject: Fwd: FW: Extraordinaire Instrument > > Non PD. This is really amazing....A friend described it as "your brain on > music" > > Turn your sound on for this. Read this first, then watch. This is almost > unbelievable. See how all of the balls wind up in catcher cones. > > This incredible machine was built as a collaborative effort between the > Robert M. Trammell Music Conservatory and the Sharon Wick School of > Engineering at the University of Iowa .. Amazingly, 97% of the machines > components came from John Deere Industries and Irrigation Equipment of > Bancroft , Iowa ..Yes, farm equipment! > > It took the team a combined 13,029 hours of set-up, alignment, calibration, > and tuning before filming this video but as you can see it was WELL worth > the effort. > > It is now on display in the Matthew Gerhard Alumni Hall at the University > and is already slated to be donated to the Smithsonian. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > > ____________________________________________________________ > > > No virus found in this incoming message. > Checked by AVG - www.avg.com > Version: 8.5.423 / Virus Database: 270.14.44/2475 - Release Date: 11/01/09 > 19:39:00 > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 2 Nov 2009 01:10:04 -0800 From: Haroon Basheer Shaikh <[log in to unmask]> Subject: Re: Newbie's introduction Dear Jen, Here is what is working for me age 62 retired banker diagnosed age 56 What has worked for me Slide 22 nFighting depression nPositive thinking/take charge nGood doctors, professional medical assistance nSpiritual help nFamily and spouse support nDesire to help others (Formation of Society) nUnderstanding the condition nMaking friends with PD, jokingly call it =91pinkypd=92 nNot losing hope Best Haroon Basheer www.parkinsons.org.pk On Sun, Nov 1, 2009 at 5:44 AM, Jennifer Gaudio <[log in to unmask]> wrote: > Hello all, > > > > My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October > 14th. I'm doing fairly well as I suspected it for a while and had time to > prepare. I've been experiencing tremors, muscle weakness, spasms and > rigidity in my left side since 2007. The diagnosis got confused as the wo= rst > symptoms popped up after I had tendon repair surgery on both my legs. It > seems tremors run in my family--seven have them all ranges of age--but I = am > the first to knowingly develop into pd. I'm working on participating in s= ome > studies. I figure if I can help someone else down the line it may be wort= h > it. > > > > I'm in the research and planning stages. I think that's where most of my > freakout energy is going. I found out about this listserv from "When > Parkinson's Strikes Early" and here I am. I'm most interested in how to > maintain some normalcy while losing independence as it progresses (I'm > single and likely staying that way) work and ADA issues (I'm a museum > curator) and anything that may help slow progression and keep some level = of > fitness (brfore the surgery I was a yoga and tai chi student and loved > swimming). > > > > As a newbie I'm grateful that this listserv exists, thank you to all who > developed and support this resource. > > > > Best, > > Jen > > _________________________________________________________________ > Hotmail: Trusted email with Microsoft's powerful SPAM protection. > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ Date: Mon, 2 Nov 2009 01:16:23 -0800 From: Haroon Basheer Shaikh <[log in to unmask]> Subject: Re: Newbie's introduction my life with PD Slide 27 *Dance as if no one were watching, **sing as if no one were listening, **and live everyday as if it were to **be your last.=94 * Best Haroon Basheer On Sun, Nov 1, 2009 at 5:44 AM, Jennifer Gaudio <[log in to unmask]> wrote: > Hello all, > > > > My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October > 14th. I'm doing fairly well as I suspected it for a while and had time to > prepare. I've been experiencing tremors, muscle weakness, spasms and > rigidity in my left side since 2007. The diagnosis got confused as the wo= rst > symptoms popped up after I had tendon repair surgery on both my legs. It > seems tremors run in my family--seven have them all ranges of age--but I = am > the first to knowingly develop into pd. I'm working on participating in s= ome > studies. I figure if I can help someone else down the line it may be wort= h > it. > > > > I'm in the research and planning stages. I think that's where most of my > freakout energy is going. I found out about this listserv from "When > Parkinson's Strikes Early" and here I am. I'm most interested in how to > maintain some normalcy while losing independence as it progresses (I'm > single and likely staying that way) work and ADA issues (I'm a museum > curator) and anything that may help slow progression and keep some level = of > fitness (brfore the surgery I was a yoga and tai chi student and loved > swimming). > > > > As a newbie I'm grateful that this listserv exists, thank you to all who > developed and support this resource. > > > > Best, > > Jen > > _________________________________________________________________ > Hotmail: Trusted email with Microsoft's powerful SPAM protection. > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ------------------------------ End of PARKINSN Digest - 1 Nov 2009 to 2 Nov 2009 (#2009-375) ************************************************************* ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn