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Hi jen, I too was diagnosed with Pd whilst I was practicing nuclear medicine so I know exactly what you're going through. I suffered badly form leg cramps in the lower limb so I guess I was lucky not to be damaged further as you obviously have. I was Dx in 98 and was on a downhill path till I had dbs surgery which change d my life completely. I would estimate that this surgery is still only good for certain people though those with good survivability rates and true Pd would be the best candidates. Having said that I k now john cottinham has had it for essential tremors so there's a range of applicability. Hope this helps John -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of Jennifer Gaudio Sent: Sunday, November 01, 2009 5:45 AM To: [log in to unmask] Subject: Newbie's introduction Hello all, My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October 14th. I'm doing fairly well as I suspected it for a while and had time to prepare. I've been experiencing tremors, muscle weakness, spasms and rigidity in my left side since 2007. The diagnosis got confused as the worst symptoms popped up after I had tendon repair surgery on both my legs. It seems tremors run in my family--seven have them all ranges of age--but I am the first to knowingly develop into pd. I'm working on participating in some studies. I figure if I can help someone else down the line it may be worth it. I'm in the research and planning stages. I think that's where most of my freakout energy is going. I found out about this listserv from "When Parkinson's Strikes Early" and here I am. I'm most interested in how to maintain some normalcy while losing independence as it progresses (I'm single and likely staying that way) work and ADA issues (I'm a museum curator) and anything that may help slow progression and keep some level of fitness (brfore the surgery I was a yoga and tai chi student and loved swimming). As a newbie I'm grateful that this listserv exists, thank you to all who developed and support this resource. Best, Jen _________________________________________________________________ Hotmail: Trusted email with Microsoft's powerful SPAM protection. http://clk.atdmt.com/GBL/go/177141664/direct/01/ http://clk.atdmt.com/GBL/go/177141664/direct/01/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn