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My own experiences with doctors (while my husband was being treated for a rare and eventually fatal cancer) was that they'd say anything to get you to participate if you seemed like a good subject. They are more concerned about their academic careers sometimes than the patients (not all doctors, obviously, but I did find this to be true in very competitive, highly ranked research centers). So, yes, tread carefully. kathy t. Rick McGirr wrote: > Jen, a whole lot has been tried and has failed, not to mention messing > people up in the process. Do what you will. Experiments on the brain are > usually dicey. Offering yourself for experimentation can be a brave, noble, > or needy or mercenary act. But tread carefully. > > Rick McGirr > > -----Original Message----- > From: Parkinson's Information Exchange Network > [mailto:[log in to unmask]] On Behalf Of Jennifer Gaudio > Sent: Tuesday, November 03, 2009 8:00 AM > To: [log in to unmask] > Subject: Thanks to all > > Morning, > Thanks to all for the support and welcome. I appreciate it immensely. > I wanted to pass on that my diagnosis was made by Dr. Bahmar Jabbari, a > motion disorder specialist at Yale Neurology Clinic. So I think I'm stuck > with the pd diagnosis :) > My head's in a pretty good place. I'm not angry nor to I want to waste time > on self-pity. Not that I won't have the great-great-great grandmammy of all > freakouts as it progresses. Mostly I am trying to live in the moment, enjoy > my life, and do everything I can to slow the progression. > The surgery on my legs was to repair tendons unrelated to the pd > (peripherally). I fell down some stairs in grad school and had pathetic > health insurance and never got them checked. Five years later I had nothing > holding my ankles together. Oddly, it was after the first surgery that the > pd symptoms visibly manifested. Unfortunately, two surgeries in two years > and a year of anxiety waiting for a diagnosis puts me at a significant > deficit in the fitness arena. My wii fit has taken to scolding me. > I've done clinical trials for things like endometriosis, but never anything > like pd. Has anyone out there tried it? I want to try one offered by Yale, > but I'm worried that it may affect my behavior/job performance. > best,Jen > _________________________________________________________________ > Windows 7: Unclutter your desktop. > http://go.microsoft.com/?linkid=9690331&ocid=PID24727::T:WLMTAGL:ON:WL:en-US > :WWL_WIN_evergreen:112009 > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn