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I've been partipating in clinical trials for about 19 yr and have done over 14 of them. They do not mess with your brain! It is my way of contributing and I have met and worked with some the best neuroscientists in the world. They are very caring people. I was just recruited for a genetic study of young onset pwp sponsered by NIH and conducted Dr Mauder out of Columbia U. For this study I was called by Dr Nutt of OHSU. Every one I come in contact with is encouraged to keep there mind focused on finding the cause(s) of this family of diseases. For without that how can we prevent it. But who knows what obscure piece of data will be of help. You should certainly read the description and ask questions but I would encourage you to participate. Have fun! \Randy Games to Entertain Your Brain http://www.stargraphics.com ----- Original Message ----- From: "Kathryn Temple" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, November 05, 2009 7:56 AM Subject: clinical trials > My own experiences with doctors (while my husband was being treated for a > rare and eventually fatal cancer) was that they'd say anything to get you > to participate if you seemed like a good subject. They are more concerned > about their academic careers sometimes than the patients (not all doctors, > obviously, but I did find this to be true in very competitive, highly > ranked research centers). So, yes, tread carefully. > > kathy t. > > Rick McGirr wrote: >> Jen, a whole lot has been tried and has failed, not to mention messing >> people up in the process. Do what you will. Experiments on the brain >> are >> usually dicey. Offering yourself for experimentation can be a brave, >> noble, >> or needy or mercenary act. But tread carefully. >> >> Rick McGirr >> >> -----Original Message----- >> From: Parkinson's Information Exchange Network >> [mailto:[log in to unmask]] On Behalf Of Jennifer Gaudio >> Sent: Tuesday, November 03, 2009 8:00 AM >> To: [log in to unmask] >> Subject: Thanks to all >> >> Morning, Thanks to all for the support and welcome. I appreciate it >> immensely. I wanted to pass on that my diagnosis was made by Dr. Bahmar >> Jabbari, a >> motion disorder specialist at Yale Neurology Clinic. So I think I'm stuck >> with the pd diagnosis :) My head's in a pretty good place. I'm not angry >> nor to I want to waste time >> on self-pity. Not that I won't have the great-great-great grandmammy of >> all >> freakouts as it progresses. Mostly I am trying to live in the moment, >> enjoy >> my life, and do everything I can to slow the progression. The surgery on >> my legs was to repair tendons unrelated to the pd >> (peripherally). I fell down some stairs in grad school and had pathetic >> health insurance and never got them checked. Five years later I had >> nothing >> holding my ankles together. Oddly, it was after the first surgery that >> the >> pd symptoms visibly manifested. Unfortunately, two surgeries in two years >> and a year of anxiety waiting for a diagnosis puts me at a significant >> deficit in the fitness arena. My wii fit has taken to scolding me. I've >> done clinical trials for things like endometriosis, but never anything >> like pd. Has anyone out there tried it? I want to try one offered by >> Yale, >> but I'm worried that it may affect my behavior/job performance. best,Jen >> _________________________________________________________________ >> Windows 7: Unclutter your desktop. >> http://go.microsoft.com/?linkid=9690331&ocid=PID24727::T:WLMTAGL:ON:WL:en-US >> :WWL_WIN_evergreen:112009 >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn