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Jen, welcome to the list. The most important thing you can do in order to stay functional is to find a movement disorder specialist. Not all neurologists are well versed in treatment and management of Young Onset Parkinson's Disease. You might have to do some research in order to come up with a movement disorder specialist in your area, but believe me......it will be worth it. -------- God bless Mary Ann (CG Jamie 68/28 years with PD, died 11/20/07) > > > > My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October > 14th. I'm doing fairly well as I suspected it for a while and had time to > prepare. I've been experiencing tremors, muscle weakness, spasms and > rigidity in my left side since 2007. The diagnosis got confused as the > worst symptoms popped up after I had tendon repair surgery on both my > legs. It seems tremors run in my family--seven have them all ranges of > age--but I am the first to knowingly develop into pd. I'm working on > participating in some studies. I figure if I can help someone else down > the line it may be worth it. > > > > I'm in the research and planning stages. I think that's where most of my > freakout energy is going. I found out about this listserv from "When > Parkinson's Strikes Early" and here I am. I'm most interested in how to > maintain some normalcy while losing independence as it progresses (I'm > single and likely staying that way) work and ADA issues (I'm a museum > curator) and anything that may help slow progression and keep some level > of fitness (brfore the surgery I was a yoga and tai chi student and loved > swimming). > > > > As a newbie I'm grateful that this listserv exists, thank you to all who > developed and support this resource. > > > > Best, > > Jen > > _________________________________________________________________ > Hotmail: Trusted email with Microsoft's powerful SPAM protection. > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn