 |
 |
I agree totally. Rayilyn Brown Director AZNPF Arizona Chapter National Parkinson Foundation [log in to unmask] -------------------------------------------------- From: "chew nee kong" <[log in to unmask]> Sent: Thursday, October 29, 2009 9:59 PM To: <[log in to unmask]> Subject: Re: Exercise & PD > Dear Ray > > Just like other treatments of PD (e.g. medications), the benefit of > exercise in PD is difficult to prove. On the other hand, there is no > evidence that exercise does not help in Parkinson's. > > For a progressive illness such as PD, absence of improvement does not > necessarily mean that the treatment (e.g. exercise) is not effective. The > very fact that the condition has stabilized or the deterioration is slower > is already suggestive of a positive benefit of a treatment. > > Yes, the cure for PD will not arrive so soon. You have the right > attitude - while you are still alive, you make the best of whatever you > have in life. And all of us should do our best to make life better for > others who suffer from PD. > > All of us should remain hopeful - it doesn't hurt to keep this hope alive. > > Dr Chew > >> Date: Wed, 28 Oct 2009 23:24:21 -0700 >> From: [log in to unmask] >> Subject: Re: Exercise & PD >> To: [log in to unmask] >> >> John >> >> I think you are just being realistic, I don't think there will be a >> "cure" >> in my lifetime either, but we need to push for it. It gives me something >> to >> do while I wait to die. Since I don't know when that will be, I want >> to >> do all I can to help myself. You've perhaps heard the saying "if I had >> known I was going to live this long I would have taken better care of >> myself". Since I can barely walk I don't think I will be competing in >> any >> sports events, but will keep on pedaling, just because it can't hurt. >> DBS >> in 2003 has controlled my tremors. >> >> Ray >> >> Rayilyn Brown >> Director AZNPF >> Arizona Chapter National Parkinson Foundation >> [log in to unmask] >> >> -------------------------------------------------- >> From: "john thomas" <[log in to unmask]> >> Sent: Wednesday, October 28, 2009 12:51 PM >> To: <[log in to unmask]> >> Subject: Re: Exercise & PD >> >> > Personally I don't think there will be a "cure" in my lifetime. >> > I have had the dbs surgery and am "cured" of major symptoms. I need to >> > work >> > o n my speech, my balance and my bike riding. In fact I wish I could >> > ride >> > for 3-4 hours per day then I could enter the Hawaii iron man team's >> > event >> > The simple fact is this is a disease of unknown etiology. As a >> > consequence >> > it gets umbrella diagnosis. >> > Until the origins are truly y found which is most probably a genetic >> > breakdown rather than a genetic hereditary trait, there will be no" >> > cure >> > ". >> > Not to say the origins of the disease won't be found when the human >> > genome >> > project finally makes sense, just that the cure may be worse the >> > disease. >> > I don't wish to be so negative on this but when everyone begins to >> > realizes >> > that the symptoms relief is th best we have at the moment from >> > degenerative process then he better weal will be roach this dieses >> > with >> > the focus on quality of life rather than a simplistic notion of disease >> > therefore cure approach. >> > So I would say to you keep up the good work and plan on the Hawaii >> > ironman >> > event. >> > John Thomas >> > BAPS MEDICAL RADIATION >> > >> > -----Original Message----- >> > From: Parkinson's Information Exchange Network >> > [mailto:[log in to unmask]] On Behalf Of rayilynlee >> > Sent: Tuesday, October 27, 2009 7:04 PM >> > To: [log in to unmask] >> > Subject: Exercise & PD >> > >> > I've gotten my forced exercise of cycling up to 3 and 4 hours a day >> > with >> > no >> > improvement in symptoms after 3 months; however I've managed to lose >> > about >> > 5 >> > lbs. This University of Pittsburg study claims great promise for >> > exercise >> > as PD treatment. I'm kinda hooked on it as I can watch TV and do it. >> > >> > What think you Dr. Chu? >> > >> > Ray >> > http://www.barchester.com/Healthcare-News/New-Parkinson's-breakthrough-is-%2 >> > 2tantalising%22/376/3062 >> > >> > >> > >> > Rayilyn Brown >> > Director AZNPF >> > Arizona Chapter National Parkinson Foundation >> > [log in to unmask] >> > >> > ---------------------------------------------------------------------- >> > To sign-off Parkinsn send a message to: >> > mailto:[log in to unmask] >> > In the body of the message put: signoff parkinsn >> > >> > ---------------------------------------------------------------------- >> > To sign-off Parkinsn send a message to: >> > mailto:[log in to unmask] >> > In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > _________________________________________________________________ > New Windows 7: Find the right PC for you. Learn more. > http://windows.microsoft.com/shop > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn