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Morning Amanda, I dont really understand it myself, I'm thinking I did the speed course in grieving in the three years I was in limbo waiting for the confirmation. I'm a bit OCD (most curators are) and planning helps channel me instead of spinning my wheels. :) Thats not to say anything I'm doing actually makes sense!... I have no problem in thinking the mother of all freakouts is waiting for me somewhere down the line.... > Date: Tue, 3 Nov 2009 13:54:41 +0000 > From: [log in to unmask] > Subject: Re: Newbie's introduction > To: [log in to unmask] > > Hi Jennifer ! > You've forgotten to do the denial / shut down in fear stage :) > You're either braver than me or better organised... > Amanda > (diagnosed 4 years ago & only just starting to plan). > > Quoting Jennifer Gaudio <[log in to unmask]>: > > > Hello all, > > > > > > > > My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October > > 14th. I'm doing fairly well as I suspected it for a while and had time to > > prepare. I've been experiencing tremors, muscle weakness, spasms and rigidity > > in my left side since 2007. The diagnosis got confused as the worst symptoms > > popped up after I had tendon repair surgery on both my legs. It seems tremors > > run in my family--seven have them all ranges of age--but I am the first to > > knowingly develop into pd. I'm working on participating in some studies. I > > figure if I can help someone else down the line it may be worth it. > > > > > > > > I'm in the research and planning stages. I think that's where most of my > > freakout energy is going. I found out about this listserv from "When > > Parkinson's Strikes Early" and here I am. I'm most interested in how to > > maintain some normalcy while losing independence as it progresses (I'm single > > and likely staying that way) work and ADA issues (I'm a museum curator) and > > anything that may help slow progression and keep some level of fitness > > (brfore the surgery I was a yoga and tai chi student and loved swimming). > > > > > > > > As a newbie I'm grateful that this listserv exists, thank you to all who > > developed and support this resource. > > > > > > > > Best, > > > > Jen > > > > _________________________________________________________________ > > Hotmail: Trusted email with Microsoft's powerful SPAM protection. > > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > > http://clk.atdmt.com/GBL/go/177141664/direct/01/ > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > > > > ---------------------------------------------- > This mail sent through http://www.ukonline.net > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn _________________________________________________________________ Hotmail: Trusted email with powerful SPAM protection. http://clk.atdmt.com/GBL/go/177141665/direct/01/ ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn