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Hello all, 

 

My name is Jen Gaudio. I'm 38 and was just diagnosed with YOPD on October 14th. I'm doing fairly well as I suspected it for a while and had time to prepare. I've been experiencing tremors, muscle weakness, spasms and rigidity in my left side since 2007. The diagnosis got confused as the worst symptoms popped up after I had tendon repair surgery on both my legs. It seems tremors run in my family--seven have them all ranges of age--but I am the first to knowingly develop into pd. I'm working on participating in some studies. I figure if I can help someone else down the line it may be worth it. 

 

I'm in the research and planning stages. I think that's where most of my freakout energy is going. I found out about this listserv from "When Parkinson's Strikes Early" and here I am. I'm most interested in how to maintain some normalcy while losing independence as it progresses (I'm single and likely staying that way) work and ADA issues (I'm a museum curator) and anything that may help slow progression and keep some level of fitness (brfore the surgery I was a yoga and tai chi student and loved swimming).

 

As a newbie I'm grateful that this listserv exists, thank you to all who developed and support this resource.

 

Best,

Jen
 		 	   		  
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