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Good morning, Believe me, I'm not rushing into anything. I had a wonderful experience working with the Virginia Women's Center on a clinical study for endometriosis. It was very positive and wound up helping me and my sister. So I guess I expect all studies to be good based on that experience. I'm intimidated and frightened by the potential side effects of the medication currently available for pd, and imagining what an experimental drug may pose my cranky brain is giving me the willies. I'm probably not going to participate. I just would like to do something constructive. Speaking of which, what's the word on the 23andme study? Best,Jen > Date: Thu, 5 Nov 2009 10:56:41 -0500 > From: [log in to unmask] > Subject: clinical trials > To: [log in to unmask] > > My own experiences with doctors (while my husband was being treated for > a rare and eventually fatal cancer) was that they'd say anything to get > you to participate if you seemed like a good subject. They are more > concerned about their academic careers sometimes than the patients (not > all doctors, obviously, but I did find this to be true in very > competitive, highly ranked research centers). So, yes, tread carefully. > > kathy t. > > Rick McGirr wrote: > > Jen, a whole lot has been tried and has failed, not to mention messing > > people up in the process. Do what you will. Experiments on the brain are > > usually dicey. Offering yourself for experimentation can be a brave, noble, > > or needy or mercenary act. But tread carefully. > > > > Rick McGirr > > > > -----Original Message----- > > From: Parkinson's Information Exchange Network > > [mailto:[log in to unmask]] On Behalf Of Jennifer Gaudio > > Sent: Tuesday, November 03, 2009 8:00 AM > > To: [log in to unmask] > > Subject: Thanks to all > > > > Morning, > > Thanks to all for the support and welcome. I appreciate it immensely. > > I wanted to pass on that my diagnosis was made by Dr. Bahmar Jabbari, a > > motion disorder specialist at Yale Neurology Clinic. So I think I'm stuck > > with the pd diagnosis :) > > My head's in a pretty good place. I'm not angry nor to I want to waste time > > on self-pity. Not that I won't have the great-great-great grandmammy of all > > freakouts as it progresses. Mostly I am trying to live in the moment, enjoy > > my life, and do everything I can to slow the progression. > > The surgery on my legs was to repair tendons unrelated to the pd > > (peripherally). I fell down some stairs in grad school and had pathetic > > health insurance and never got them checked. Five years later I had nothing > > holding my ankles together. Oddly, it was after the first surgery that the > > pd symptoms visibly manifested. Unfortunately, two surgeries in two years > > and a year of anxiety waiting for a diagnosis puts me at a significant > > deficit in the fitness arena. My wii fit has taken to scolding me. > > I've done clinical trials for things like endometriosis, but never anything > > like pd. Has anyone out there tried it? I want to try one offered by Yale, > > but I'm worried that it may affect my behavior/job performance. > > best,Jen > > _________________________________________________________________ > > Windows 7: Unclutter your desktop. > > http://go.microsoft.com/?linkid=9690331&ocid=PID24727::T:WLMTAGL:ON:WL:en-US > > :WWL_WIN_evergreen:112009 > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn _________________________________________________________________ Windows 7: Unclutter your desktop. http://go.microsoft.com/?linkid=9690331&ocid=PID24727::T:WLMTAGL:ON:WL:en-US:WWL_WIN_evergreen:112009 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn