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I am a 10 year veteran of bi-lateral DBS and have had the same 
symptoms when drinking, having a dry cough and a tightness in the 
throat interfering with enunciation and in general sounding like a drunk.

I know what frustration you have trying to be understood and raising 
the voice in some cultures is an affront. Even family understand this 
frustration of me shouting (their interpretation) and occasional 
folks like store clerks avoid me.

Number 1. After my trip to San Francisco for stimulator replacement 
and reprogramming I frequently choke on drinks, tiredness brings on 
frustration by trying to be understood and speech appears drunken.

For years I found I could cope by turning off the right chest 
stimulator. Depending on which side is most disabled would determine 
which stimulator to turn off. If you have to make a public speech, 
turn off the offending stimulator and put the shaking hand in your 
pocket. My right stimulator controls the left hand which I use to 
write. I just don't write when I feel I may be called on for interaction.

Number 2. There is crosstalk in the halves of the brain that cause 
head tremor and tightening of the vocal cords and the throat. By 
turning off the contralateral unit, you regain normal voice volume 
and your diction will be restored. Chances are that your head shake 
will not be noticeable if you have either the yes-yes or no-no type. 
So far several programmers have not been able to discover a program 
combination that will alleviate these quirks and most of the time do 
not recognize the symptomatic unintended consequences of over 
programming. Your primary care doctor should be alerted that you are 
a hybrid patient and to not attempt to treat parts of the body that 
are prone to paranthesias from the devices. Case in point is I came 
down with a virus which involved mucous and hard coughing in which I 
could not stop long enough to bet my breath. Antibiotics cured the 
biological part but the coughing prevailed. At that time my 
stimulators where on 24/7. I turned the right stimulator off and the 
coughing and choking disappeared.

Number 3. If your stimulators are programmed to produce a high 
voltage in order to control your symptoms, you will eat up 
stimulators in short order. Here in the Philippines they cost about 
$20,000 each which might sound cheap compared to the hospital billing 
medicare pays. U.S. medicare is not accepted here. Higher stimulator 
settings lead to more side effects and shorter life.

In conclusion, Ray, good help is hard to find! Barbara Patterson and 
I sure appreciate all you do here helping keep us informed.

To the rest, we wish you all a Happy and Prosperous New Year and for 
those in Asia, the same for Chinese New Year!

John Cottingham
co-owner Parkinsn

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