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Dear Rayilyn,

I'm so sorry, but my experience is that when you get to this point, you 
have to move on and find a new person. I know it's really hard to find 
somebody.

I've had a lot of help over the years, first when my husband had 
terminal cancer and then for the past three and a half years to help me 
with my daughter and the house since I have a really demanding job. And 
my father who has PD is in care with numerous caregivers.

A trusted friend tells me that these relationships have a life-cycle and 
that the relationship kind of "wears out" after a while and this makes 
sense to me. Also, in managing people at work I have found that letting 
them take advantage and continue on while they are not performing is 
psychologically damaging to them as well as to the manager, better to 
let them go find another job after a few attempts to work with them.

What worries me here is the abuse potential. This person is not 
listening to you or treating you with respect and you are vulnerable 
(less vulnerable than some because you have friends and are the Director 
of your chapter, so have support, but still vulnerable).

On a very prosaic note, that business with the laundry worries me 
because it means  she's not cleaning the lint traps and is overloading 
the machines, both risks of fire. After a few rounds with my cleaning 
lady over the same thing, I have prohibited her from doing any of my 
laundry.

As far as letting your person go, I've found it better to be very 
pragmatic and not get into details. You just tell the person (or better 
yet have a relative or other person tell them) that the schedule isn't 
working out and you've found someone else who is a better fit. You'll 
need help especially if she has keys and access to your house. People 
with this mentality can get angry and then justify various sorts of 
"revenge." Once was sharing a nanny with another family. Had to let her 
go after about two months because she wasn't showing up for work (which 
meant that neither of us could get to work). Her final act was to turn 
on all the water in the house and stop up the drains while the other 
family was at work.

There are good caregivers out there and certainly better than what 
you're describing. My grandmother had one, for instance, and even my 
cleaning lady with all her issues (she has grown old working for me so 
despite the issues I won't let her go) would be better.

Good luck, it's almost a new year, a good time to make a change.

Kathy



rayilynlee wrote:
> Hi NK and fellow Parkies and CGs:
>
> I've had company the last few days and unable to  do computer work.  I'm completely worn out. 
>
> I'm also having problems with my "caregiver".  For sometime now she has been very annoyed and angry with me for my voice problems.   Because I am not screaming bloody murder she assumes PD is like getting old.   If I raise my voice she reacts like I am angry with her even though I have explained that I "strangle" when I try to speak.   I typed her a message on the  computer this week.  The trouble is she is not a very smart or sophisticated person and is not going to change.  She will never understand Parkinson's.
>
> I'm putting this message on the PIEN in an effort to get advice from everyone.
>
> There are other problems too (last Christmas she threw out my mothers ashes), the destruction of my clothes with lint, wrinkles, putting white and dark colors together is reaching a critical mass and she denies any responsibility and she told me I should  buy different kinds of clothes.  She left me for over an hour at the manicurist while she ate lunch last week.  I don't mind her always eating on the job, but this was too much.  She never answered her phone when the proprietors called her several times.
>
> She lives with her daughter, son-in-law and is part-time babysitter for their 3 young children.  They both work for Southwest Airlines and she never knows what day she will work for me.  She has a hectic life and I try to accommodate her.  I store her things in my extra closets for her.
>
> Any suggestions would be appreciated.  She has good qualities and it is not easy to find someone.  She has worked for me for  5 years.     In the beginning I made a list of chores and left her alone.  
>
> These problems have grown - as my PD has gotten worse.  the clothes thing happened a few at a time.  eating on job has increased -  she used to take  me out to eat and I bought her meals.  not answering her phone is a few instances at a time.  Not wanting to make a big deal out of little things, they have accumulated.
>
> Ray
>
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
>
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