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One more comment about not being able to hear you, which is VERY FRUSTRATING, as a caregiver myself and i have been married to Alan for 30 years, 16 of those years have been with Parkinsons: we bought a CHATTER VOX, that Medicare helped pay for. google CHATTER VOX. it is the only voice magnifier system that Medicare will help pay for. it magnifies Alan's voice,and he wears it on his belt and the head piece holds the microphone. the only thing we wish were different about it, is that it was in his skin color. it comes in black, but lighter color would be less noticeable to the people you want to communicate with. I am asking CHATTER VOX if they will make a light colored flesh microphone, they originally said they would when we ordered it several months ago, but at the time, we said we would try the black one. I think less attention to Alan's barely audible voice would be helpful. It is so wonderful to hear him speak, without having to go what, what, what did you say. Others agree. patti cg 16 On Dec 26, 2009, at 8:47 PM, rayilynlee wrote: > Hi NK and fellow Parkies and CGs: > > I've had company the last few days and unable to do computer work. > I'm completely worn out. > > I'm also having problems with my "caregiver". For sometime now she > has been very annoyed and angry with me for my voice problems. > Because I am not screaming bloody murder she assumes PD is like > getting old. If I raise my voice she reacts like I am angry with > her even though I have explained that I "strangle" when I try to > speak. I typed her a message on the computer this week. The > trouble is she is not a very smart or sophisticated person and is > not going to change. She will never understand Parkinson's. > > I'm putting this message on the PIEN in an effort to get advice from > everyone. > > There are other problems too (last Christmas she threw out my > mothers ashes), the destruction of my clothes with lint, wrinkles, > putting white and dark colors together is reaching a critical mass > and she denies any responsibility and she told me I should buy > different kinds of clothes. She left me for over an hour at the > manicurist while she ate lunch last week. I don't mind her always > eating on the job, but this was too much. She never answered her > phone when the proprietors called her several times. > > She lives with her daughter, son-in-law and is part-time babysitter > for their 3 young children. They both work for Southwest Airlines > and she never knows what day she will work for me. She has a hectic > life and I try to accommodate her. I store her things in my extra > closets for her. > > Any suggestions would be appreciated. She has good qualities and it > is not easy to find someone. She has worked for me for 5 > years. In the beginning I made a list of chores and left her > alone. > > These problems have grown - as my PD has gotten worse. the clothes > thing happened a few at a time. eating on job has increased - she > used to take me out to eat and I bought her meals. not answering > her phone is a few instances at a time. Not wanting to make a big > deal out of little things, they have accumulated. > > Ray > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn