 |
 |
Ray: As you may remember I am the Caregiver for my wife and have help from two ladies,one in the morning, one at night. For my care giving as well as that of the ladies I find that one has to be pragmatic. I have long given up to worry about the laundry, lint and colored blotches. More generally one has to (try) to emphasize the important stuff and not worry about the other. Can you live with dirty clothes? No. But can you live with blotchy clothes? Yes. Remember a PWP is not in a beauty contest. Carline also gets very messy when fed or when she is drooling. It is best to overlook many of these things in favor of the important ones. Does Carline need the Calories? Yes. Does messy eating reduce the calories? Yes, but only by the amount that ends up on the bib. So, the answer is No. As far as the work schedule and presence of you cg is concerned, that is important and you must make that clear, either in writing or by voice. I hope this helps K. F. cg Carline rayilynlee wrote: > Hi NK and fellow Parkies and CGs: > > I've had company the last few days and unable to do computer work. I'm completely worn out. > > I'm also having problems with my "caregiver". For sometime now she has been very annoyed and angry with me for my voice problems. Because I am not screaming bloody murder she assumes PD is like getting old. If I raise my voice she reacts like I am angry with her even though I have explained that I "strangle" when I try to speak. I typed her a message on the computer this week. The trouble is she is not a very smart or sophisticated person and is not going to change. She will never understand Parkinson's. > > I'm putting this message on the PIEN in an effort to get advice from everyone. > > There are other problems too (last Christmas she threw out my mothers ashes), the destruction of my clothes with lint, wrinkles, putting white and dark colors together is reaching a critical mass and she denies any responsibility and she told me I should buy different kinds of clothes. She left me for over an hour at the manicurist while she ate lunch last week. I don't mind her always eating on the job, but this was too much. She never answered her phone when the proprietors called her several times. > > She lives with her daughter, son-in-law and is part-time babysitter for their 3 young children. They both work for Southwest Airlines and she never knows what day she will work for me. She has a hectic life and I try to accommodate her. I store her things in my extra closets for her. > > Any suggestions would be appreciated. She has good qualities and it is not easy to find someone. She has worked for me for 5 years. In the beginning I made a list of chores and left her alone. > > These problems have grown - as my PD has gotten worse. the clothes thing happened a few at a time. eating on job has increased - she used to take me out to eat and I bought her meals. not answering her phone is a few instances at a time. Not wanting to make a big deal out of little things, they have accumulated. > > Ray > > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > [log in to unmask] > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn