P.S. You should be able to buy washing powder which prevents colours from
running when mixed in the wash, costs a bit more but worth it. (oh, and if
possible, set the washing machine controls yourself). I realise that's only one
minor problem.
----- Forwarded message from [log in to unmask] -----
Date: Sun, 27 Dec 2009 17:27:59 +0000
From: [log in to unmask]
Subject: Re: Help!! Advice needed re caregiver
To: Parkinson's Information Exchange Network
<[log in to unmask]>
I'm sorry to hear of your difficulties.
It looks to me like your problems and your caregivers problems are clashing &
fighting for attention.
How about agreeing to take it in turns to grcomplain / criticise, with
sulking /tantrums/throwing things banned !
No-one enjoys being critised or changing but I bet she can if she wants.
Wishing you a better new year.
Amanda
P.S. minding 3 young kids is hard work !
Quoting rayilynlee <[log in to unmask]>:
> Hi NK and fellow Parkies and CGs:
>
> I've had company the last few days and unable to do computer work. I'm
> completely worn out.
>
> I'm also having problems with my "caregiver". For sometime now she has been
> very annoyed and angry with me for my voice problems. Because I am not
> screaming bloody murder she assumes PD is like getting old. If I raise my
> voice she reacts like I am angry with her even though I have explained that I
> "strangle" when I try to speak. I typed her a message on the computer this
> week. The trouble is she is not a very smart or sophisticated person and is
> not going to change. She will never understand Parkinson's.
>
> I'm putting this message on the PIEN in an effort to get advice from
> everyone.
>
> There are other problems too (last Christmas she threw out my mothers ashes),
> the destruction of my clothes with lint, wrinkles, putting white and dark
> colors together is reaching a critical mass and she denies any responsibility
> and she told me I should buy different kinds of clothes. She left me for
> over an hour at the manicurist while she ate lunch last week. I don't mind
> her always eating on the job, but this was too much. She never answered her
> phone when the proprietors called her several times.
>
> She lives with her daughter, son-in-law and is part-time babysitter for their
> 3 young children. They both work for Southwest Airlines and she never knows
> what day she will work for me. She has a hectic life and I try to
> accommodate her. I store her things in my extra closets for her.
>
> Any suggestions would be appreciated. She has good qualities and it is not
> easy to find someone. She has worked for me for 5 years. In the
> beginning I made a list of chores and left her alone.
>
> These problems have grown - as my PD has gotten worse. the clothes thing
> happened a few at a time. eating on job has increased - she used to take
> me out to eat and I bought her meals. not answering her phone is a few
> instances at a time. Not wanting to make a big deal out of little things,
> they have accumulated.
>
> Ray
>
> Rayilyn Brown
> Director AZNPF
> Arizona Chapter National Parkinson Foundation
> [log in to unmask]
>
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