 |
 |
That's true. The best person to answer Nihal's questions is his own neurologist. It is difficult to give any medical opinion without seeing the patient. Furthermore, the treatment varies from one person to the other - there is no two identical Parkinson's patient. Physicians usually do not recommend any supplements to Parkinson's patients. NK Chew > Date: Tue, 12 Jan 2010 21:26:33 -0700 > From: [log in to unmask] > Subject: Nihal's questions > To: [log in to unmask] > > Nihal > > There is no one person on this List who is an authority to whom all > questions can be posed. Perhaps if you posted each of your concerns > separately you would get a good response from list members as to shared > experiences. > > I couldn't possibly offer anything on meds as I don't take them. I was > diagnosed 14 years ago at age 60 and PD meds didn't help me. However, DBS > brain surgery in 2003 stopped my tremors. > > Exercise all you can and stick to it as long as your doctor approves. > > You will find that we are all different and need to decide on our own course > of treatment after learning all we can. > > Welcome and good luck. > > Ray > Rayilyn Brown > Director AZNPF > Arizona Chapter National Parkinson Foundation > > > -------------------------------------------------- > From: "Nihal De Silva" <[log in to unmask]> > Sent: Monday, January 11, 2010 1:15 AM > To: <[log in to unmask]> > Subject: Re: PARKINSN Digest - 9 Jan 2010 to 10 Jan 2010 (#2010-17) > > > Dear Sir, > > > > I hail from distant Sri Lanka,and was diagnosed with mild forms of PD in > > July 2008,and now have neck pains and headaches and even pains in my rib > > cage areas and at times stiffness to move for afew seconds at atime. > > > > What would you recommend to me. > > > > i do not want to commence with strong medicaments as I am only 60 years > > old.. > > > > I sleep well, but get up with a heavy head or a feeling of low pressure > > though pressure is normal when measured at the clinic. > > > > I experience this heavy headedness most times of the day and feel down and > > out mostly in the first half of the day,ie..morning and early > > afternoon,and feel better in the evening. > > please advise. > > I stopped working resultantly due to pain etc,. > > > > I exercise on the treadmill afew times a week and splash about in a pool > > afew times week and take a steam bath 3 times a week, is this o.k. > > > > I drive as I cannot afford a driver nor a taxi..is it o.k. > > > > I am om Sinemet-62.5 mg,4 times per day, one tablet every 6 hours,is this > > sufficient,is this why I am feeling out of sorts,please advise regards > > stiffness, pains,heavyheadedness etc. > > > > Is there a nerve tonic you could recommend? > > > > Looking forwards to an immediate response. > > > > Best Wishes, > > > > sincerely yours, > > > > Nihal De Silva. > > > > --- On Mon, 11/1/10, PARKINSN automatic digest system > > <[log in to unmask]> wrote: > > > > > > From: PARKINSN automatic digest system <[log in to unmask]> > > Subject: PARKINSN Digest - 9 Jan 2010 to 10 Jan 2010 (#2010-17) > > To: [log in to unmask] > > Date: Monday, 11 January, 2010, 10:30 > > > > > > There are 7 messages totalling 304 lines in this issue. > > > > Topics of the day: > > > > 1. Yoga and PD (2) > > 2. External focus improves postural stability in patients with PD > > 3. back and neck pain > > 4. The Facts About Glutathione and PD (2) > > 5. Food Sources that Boost Glutathione Naturally > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > > > Date: Sat, 9 Jan 2010 12:52:26 +0000 > > From: Myfirstname Mylastname <[log in to unmask]> > > Subject: Re: Yoga and PD > > > > RG8geW91IGhhdmUgYW4geW9nYSAgaW5zdHJ1Y3RvciBmb3IgcHJlbSwgaGFyb29uDQotLS0tLS1P > > cmlnaW5hbCBNZXNzYWdlLS0tLS0tDQpGcm9tOiBNb25lZXNoYSBTaGFybWENClNlbmRlcjogUGFy > > a2luc29uJ3MgSW5mb3JtYXRpb24gRXhjaGFuZ2UgTmV0d29yaw0KVG86IFBBUktJTlNOQGxpc3Rz > > ZXJ2LnV0b3JvbnRvLmNhDQpSZXBseVRvOiBQYXJraW5zb24ncyBJbmZvcm1hdGlvbiBFeGNoYW5n > > ZSBOZXR3b3JrDQpTdWJqZWN0OiBSZTogWW9nYSBhbmQgUEQNClNlbnQ6IEphbiA5LCAyMDEwIDEy > > OjE0IFBNDQoNCllvZ2EsIHRocmVlIHRpbWVzIGEgd2VlaywgaXMgY2VydGFpbmx5IHdvcmtpbmcg > > Zm9yIFByZW0uDQpNb25lZXNoYS4NCg0KDQoyMDEwLzEvOSByYXlpbHlubGVlIDxyYXlpbHlubGVl > > QGNveC5uZXQ+DQoNCj4gb25lIGJpZyBwYXJhZ3JhcGgNCj4NCj4gUmF5aWx5biBCcm93bg0KPiBE > > aXJlY3RvciBBWk5QRg0KPiBBcml6b25hIENoYXB0ZXIgTmF0aW9uYWwgUGFya2luc29uIEZvdW5k > > YXRpb24NCj4gcmJyb3duQGF6bnBmLm9yZw0KPg0KPg0KPiBGcm9tOiBEaWFuZSBXeXNoYWsNCj4g > > U2VudDogRnJpZGF5LCBKYW51YXJ5IDA4LCAyMDEwIDEyOjM4IFBNDQo+IFRvOiByYXkgOyBkci4g > > S29uZw0KPg0KPg0KPg0KPg0KPiBodHRwOi8vd3d3LnBhcmtpbnNvbnNzeW5kcm9tZS5vcmcvMjAx > > MC8wMS95b2dhLWNhbi1oZWxwLXdpdGgtcGFya2luc29ucy1kaXNlYXNlLw0KPg0KPiAtLS0tLS0t > > LS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0t > > LS0tLS0tDQo+IFRvIHNpZ24tb2ZmIFBhcmtpbnNuIHNlbmQgYSBtZXNzYWdlIHRvOiBtYWlsdG86 > > DQo+IGxpc3RzZXJ2QGxpc3RzZXJ2LnV0b3JvbnRvLmNhDQo+IEluIHRoZSBib2R5IG9mIHRoZSBt > > ZXNzYWdlIHB1dDogc2lnbm9mZiBwYXJraW5zbg0KPg0KDQotLS0tLS0tLS0tLS0tLS0tLS0tLS0t > > LS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tLS0tDQpUbyBzaWdu > > LW9mZiBQYXJraW5zbiBzZW5kIGEgbWVzc2FnZSB0bzogbWFpbHRvOmxpc3RzZXJ2QGxpc3RzZXJ2 > > LnV0b3JvbnRvLmNhDQpJbiB0aGUgYm9keSBvZiB0aGUgbWVzc2FnZSBwdXQ6IHNpZ25vZmYgcGFy > > a2luc24NCg0KDQoqKiogVGhpcyBNZXNzYWdlIEhhcyBCZWVuIFNlbnQgVXNpbmcgbXkgQmxhY2tC > > ZXJyeSA= > > > > ------------------------------ > > > > Date: Sat, 9 Jan 2010 14:01:20 EST > > From: [log in to unmask] > > Subject: Re: External focus improves postural stability in patients with > > PD > > > > Clear as mud > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ------------------------------ > > > > Date: Sat, 9 Jan 2010 14:34:09 -0500 > > From: Rick McGirr <[log in to unmask]> > > Subject: Re: back and neck pain > > > > I've heard doctors and others say, many times in recent years, "...and [by > > the way] as we start to get older..." at which point I curl my backbone, > > wave my fists as feebly as I can and yell, in my best Ebenezer Scrooge, > > "I'm > > not getting old, I'm not!" > > > > Rick Mc > > > > -----Original Message----- > > From: Parkinson's Information Exchange Network > > [mailto:[log in to unmask]] On Behalf Of [log in to unmask] > > Sent: Friday, January 08, 2010 10:44 PM > > To: [log in to unmask] > > Subject: Re: back and neck pain > > > > Thanks to all who replied to my questions. seems everyone has their own > > unique pains > > and ways of dealing with them. maybe the pains are more from aging than > > from PD? > > linda > > > > ---------- Original Message ---------- > > From: mschild <[log in to unmask]> > > To: [log in to unmask] > > Subject: Re: back and neck pain > > Date: Thu, 7 Jan 2010 19:10:19 +0100 > > > >> Has anyone had problems with back, neck, shoulder pains -- > > > > > > John has been getting neck-shoulder bout of pain about once a year. Ice > > +ibuprofen +time sees it off > > maryse > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ------------------------------ > > > > Date: Sat, 9 Jan 2010 12:02:23 -0500 > > From: john emrys <[log in to unmask]> > > Subject: Re: The Facts About Glutathione and PD > > > >>=20 > >> I should have added that we have heard about his therapy for more than = > > 10=20 > >> years but nothing has ever been published and nobody on this list = > > apart from=20 > >> JOhn Emrys recently, has ever reported anything. I should think if = > > that=20 > >> approach were so successful, it should have transpired by now > > > > I'm not sure why it hasn't done so in the US, but in Canada he's a = > > complete unknown to the medical establishment here, though every = > > naturopath I referenced his name to, knew of him and had his books on = > > their office shelves. It may be that the GSH compound isn't easily = > > available to the general public; it's not even listed in the CPS Index = > > so most pharmacies don't even know what it is. Some of the hoops and = > > gyrations we had to go through would make you laugh [now] if they didn't = > > make you cry in frustration [first]. We had a very steep learning = > > curve... and then there's the systemic cost of administering it to the = > > patient. > > > > If you're unable to do so yourself at home, just think of it =96 the = > > compound itself, the frequency of injections, the time spent per = > > procedure (to patient and medical professional both), etc. It's not as = > > cost-effective to the medical system as downing a capsule and damnably = > > inconvenient. As far as I'm aware, it's considered a natural substance = > > which means patents don't apply. > > > > It's worth noting that one of the first questions my neuro asked was, = > > "Where are you getting it?" followed immediately by, "What does it = > > cost?" So clearly they are aware of it. She also hasn't recc that I stop = > > using it, nor dumped me as a patient. She refers to me as "... the = > > anomaly," which I have yet to decide is a compliment even though she = > > smiles when she says it. > > > > Still, the pharmacy that compounds the GSH for us keeps a couple of = > > full-size coolers of it on the shelves, mixed fresh every week. So aside = > > from people with respiratory issues and such, somebody across Canada is = > > using it.=20 > > > > Interestingly, the compound was put through clinical trials at Toronto = > > Western Hospital (which is considered to be the apex of neuro research = > > in Canada), and CAMH (Centre for Addiction and Mental Health). That was = > > in 1997 or '98; I recall coming over the articles when we were doing our = > > own research, trying to locate the doctors who worked on the study. > > > > The trial's conclusion was deemed inconclusive and recommended = > > additional research... and it wouldn't be the first time we've heard = > > that about treatments for PWP's, would it? ;) > > > > What can I say; so far, it's been working pretty well for me in delaying = > > the need for the hard stuff. ;P > > > > > > > > John > > > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ------------------------------ > > > > Date: Sat, 9 Jan 2010 17:45:40 -0500 > > From: "K. F. Etzold" <[log in to unmask]> > > Subject: Re: The Facts About Glutathione and PD > > > > Maybe it PERSPIRED already ..... > > K. F. cg Carline > > > > mschild wrote: > >>> I would prefer to see an independant study about dr Perlmutterīs > >>> therapy. > >>> So far, nothing has been published > >>> > >> > >> > >> I should have added that we have heard about his therapy for more than 10 > >> years but nothing has ever been published and nobody on this list apart > >> from > >> JOhn Emrys recently, has ever reported anything. I should think if that > >> approach were so successful, it should have transpired by now > >> maryse > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:listserv@listserv.utoronto..ca > >> In the body of the message put: signoff parkinsn > >> > >> > >> > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ------------------------------ > > > > Date: Sat, 9 Jan 2010 09:31:17 -0500 > > From: Mary Ann Ryan <[log in to unmask]> > > Subject: Re: Food Sources that Boost Glutathione Naturally > > > > Ray, you have been a big help. Thanks.. > > -------- > > Mary Ann > > www.bentwillowfarm.org > > ----- Original Message ----- > > From: "rayilynlee" <[log in to unmask]> > > To: <[log in to unmask]> > > Sent: Friday, January 08, 2010 2:18 PM > > Subject: Food Sources that Boost Glutathione Naturally > > > > > >> Lists 14 foods: beans, soy, blueberries, broccoli, oats, oranges, > >> pumpkin, salmon, spinach, black or green tea, tomatoes, turkey, walnuts, > >> yogurt. asparagas > >> supplements: NAC or N-Acetyl Cysteine, selenium, milk thistle, etc. > >> I take D, L and DL Phenylalanine which has similar chemical structure to > >> dopamine, also take milk thistle > >> > >> Ray > >> > >> > >> Rayilyn Brown > >> Director AZNPF > >> Arizona Chapter National Parkinson Foundation > >> [log in to unmask] > >> > >> > >> From: Diane Wyshak > >> Sent: Friday, January 08, 2010 11:22 AM > >> To: ray ; dr. Kong > >> Subject: Food Sources that Boost Glutathione Naturally > >> > >> > >> > >> http://www.1whey2health.com/food-sources-glutathione.htm > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ------------------------------ > > > > Date: Sun, 10 Jan 2010 12:52:50 +0530 > > From: Moneesha Sharma <[log in to unmask]> > > Subject: Yoga and PD > > > > Yes, we do. He comes three times a week for about an hour and a half each > > time. Prem had earlier taken yoga classes, but he found it difficult to > > sustain it regularly. The yoga instructor is able to do with him whatever > > he feels is necessary with his current health status. For example, after > > his fall and consequent rib fractures, he has avoided doing anything > > involving the torso. Prem invariably comes out of the room looking > > brighter > > and more cheerful. His mobility and balance always seem better. > > Moneesha > > > > > > > > 2010/1/9 Myfirstname Mylastname <[log in to unmask]> > > > > Do you have an yoga instructor for prem, haroon > >> > > > > > > > >> ------Original Message------ > >> From: Moneesha Sharma > >> Sender: Parkinson's Information Exchange Network > >> To: [log in to unmask] > >> ReplyTo: Parkinson's Information Exchange Network > >> Subject: Re: Yoga and PD > >> Sent: Jan 9, 2010 12:14 PM > >> > >> Yoga, three times a week, is certainly working for Prem. > >> Moneesha. > >> > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > ------------------------------ > > > > End of PARKINSN Digest - 9 Jan 2010 to 10 Jan 2010 (#2010-17) > > ************************************************************* > > > > > > > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn _________________________________________________________________ New Windows 7: Simplify what you do everyday. Find the right PC for you. http://windows.microsoft.com/shop ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn