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Sophie

the PD organization was celebrating the fact they had been in existence 40 
years.  people know we are far from a cure so were asking what's to 
celebrate?  we want a world where these groups don't exist.

Ray
Rayilyn Brown
Past Director AZNPF
Arizona Chapter National Parkinson Foundation


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From: "Sophie Macleod-Whitehouse" <[log in to unmask]>
Sent: Wednesday, January 27, 2010 5:21 AM
To: <[log in to unmask]>
Subject: Re: Celebrating what ? failure?

> WHAT IS THIS EMAIL ABOUT ? I KNOW ITS A BOUT PARKINSONS DISEASE BUT WHAT 
> IS ABOUT CELEBRATING/FAILURES CAN SOME ONE EXPLANE PLEASE ?
>
>> Date: Tue, 26 Jan 2010 18:14:43 -0700
>> From: [log in to unmask]
>> Subject: Re: Celebrating what ? failure?
>> To: [log in to unmask]
>>
>> Good for you, Amanda! We all need to start pushing (and a little yelling
>> doesn't hurt either)....not just the English PD Society but to everyone 
>> who
>> just shrugs us off. We have to be squeaky wheels.
>>
>> Sami
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> -------Original Message-------
>>
>>
>>
>> From: [log in to unmask]
>>
>> Date: 1/25/2010 3:10:36 AM
>>
>> To: [log in to unmask]
>>
>> Subject: Re: Celebrating what ? failure?
>>
>>
>>
>> Oh, I'm a supporter, but more an impatient than a patient;
>>
>> all being patient has ever got me is a lot of waiting (& sometimes 
>> ignored).
>>
>> My New Year resolution was to start pushing.
>>
>> Amands
>>
>>
>>
>> Quoting Sean C McMurray <[log in to unmask]>:
>>
>>
>>
>> > I like to try and keep things positive. I suspect this organization is
>>
>> > trying to do this as well.
>>
>> >
>>
>> > Good for them that they have been working for this cause that is so 
>> > close
>> to
>>
>> > "our hearts" for the past 40 years. Has a cure been found in those 40
>> years
>>
>> > ... No. But is it not possible that some of the research funding we are
>>
>> > taking advantage of today may in part or in whole be the result if the
>>
>> > promotion, issue awareness and networking of this organization in 
>> > concert
>>
>> > with other similar groups some perhaps older and others of only recent
>>
>> > establishment. We are closer to a cure now than we have ever been 
>> > before
>>
>> > this is good and worth dwelling upon and celebrating.
>>
>> >
>>
>> > No cure yet ... THERE WILL BE! Be patient and rather support others 
>> > with
>> PD
>>
>> > and the organizations that work for us in their various capacities.
>>
>> >
>>
>> > So yes I would celebrate this 40th anniversary of this English PD 
>> > Society
>>
>> >
>>
>> > Respectfully
>>
>> >
>>
>> > Sean
>>
>> > Peterborough, Ontario, Canada
>>
>> >
>>
>> >
>>
>> >
>>
>> >
>>
>> > -----Original Message-----
>>
>> > From: Parkinson's Information Exchange Network
>>
>> > [mailto:[log in to unmask]] On Behalf Of 
>> > [log in to unmask]
>>
>> > Sent: January 23, 2010 7:31 PM
>>
>> > To: [log in to unmask]
>>
>> > Subject: Celebrating what ? failure?
>>
>> >
>>
>> > I just sent the email text below to the English Parkinsons disease 
>> > society
>> -
>>
>> >
>>
>> > wonder if some people are too comfy with current conditions -
>>
>> >
>>
>> > As one of your members, I'm puzzled and irritated by the frequent
>> references
>>
>> >
>>
>> > in your literature to "celebrating" the 40 th anniversaryof your
>>
>> > organisation. Have you thought that that means celebrating 40 years of
>>
>> > failure to find a cure. I hope no subscription money went on parties.
>>
>> >
>>
>> > amanda
>>
>> >
>>
>> >
>>
>> >
>>
>> >
>>
>> > ----------------------------------------------
>>
>> > This mail sent through http://www.ukonline.net
>>
>> >
>>
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>>
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>>
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>>
>> >
>>
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>> >
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> ----------------------------------------------
>>
>> This mail sent through http://www.ukonline.net
>>
>>
>>
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