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The mail was about goals and whether an organisation has lost focus. Quoting rayilynlee <[log in to unmask]>: > Sophie > > the PD organization was celebrating the fact they had been in existence 40 > years. people know we are far from a cure so were asking what's to > celebrate? we want a world where these groups don't exist. > > Ray > Rayilyn Brown > Past Director AZNPF > Arizona Chapter National Parkinson Foundation > > > -------------------------------------------------- > From: "Sophie Macleod-Whitehouse" <[log in to unmask]> > Sent: Wednesday, January 27, 2010 5:21 AM > To: <[log in to unmask]> > Subject: Re: Celebrating what ? failure? > > > WHAT IS THIS EMAIL ABOUT ? I KNOW ITS A BOUT PARKINSONS DISEASE BUT WHAT > > IS ABOUT CELEBRATING/FAILURES CAN SOME ONE EXPLANE PLEASE ? > > > >> Date: Tue, 26 Jan 2010 18:14:43 -0700 > >> From: [log in to unmask] > >> Subject: Re: Celebrating what ? failure? > >> To: [log in to unmask] > >> > >> Good for you, Amanda! We all need to start pushing (and a little yelling > >> doesn't hurt either)....not just the English PD Society but to everyone > >> who > >> just shrugs us off. We have to be squeaky wheels. > >> > >> Sami > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> -------Original Message------- > >> > >> > >> > >> From: [log in to unmask] > >> > >> Date: 1/25/2010 3:10:36 AM > >> > >> To: [log in to unmask] > >> > >> Subject: Re: Celebrating what ? failure? > >> > >> > >> > >> Oh, I'm a supporter, but more an impatient than a patient; > >> > >> all being patient has ever got me is a lot of waiting (& sometimes > >> ignored). > >> > >> My New Year resolution was to start pushing. > >> > >> Amands > >> > >> > >> > >> Quoting Sean C McMurray <[log in to unmask]>: > >> > >> > >> > >> > I like to try and keep things positive. I suspect this organization is > >> > >> > trying to do this as well. > >> > >> > > >> > >> > Good for them that they have been working for this cause that is so > >> > close > >> to > >> > >> > "our hearts" for the past 40 years. Has a cure been found in those 40 > >> years > >> > >> > ... No. But is it not possible that some of the research funding we are > >> > >> > taking advantage of today may in part or in whole be the result if the > >> > >> > promotion, issue awareness and networking of this organization in > >> > concert > >> > >> > with other similar groups some perhaps older and others of only recent > >> > >> > establishment. We are closer to a cure now than we have ever been > >> > before > >> > >> > this is good and worth dwelling upon and celebrating. > >> > >> > > >> > >> > No cure yet ... THERE WILL BE! Be patient and rather support others > >> > with > >> PD > >> > >> > and the organizations that work for us in their various capacities. > >> > >> > > >> > >> > So yes I would celebrate this 40th anniversary of this English PD > >> > Society > >> > >> > > >> > >> > Respectfully > >> > >> > > >> > >> > Sean > >> > >> > Peterborough, Ontario, Canada > >> > >> > > >> > >> > > >> > >> > > >> > >> > > >> > >> > -----Original Message----- > >> > >> > From: Parkinson's Information Exchange Network > >> > >> > [mailto:[log in to unmask]] On Behalf Of > >> > [log in to unmask] > >> > >> > Sent: January 23, 2010 7:31 PM > >> > >> > To: [log in to unmask] > >> > >> > Subject: Celebrating what ? failure? > >> > >> > > >> > >> > I just sent the email text below to the English Parkinsons disease > >> > society > >> - > >> > >> > > >> > >> > wonder if some people are too comfy with current conditions - > >> > >> > > >> > >> > As one of your members, I'm puzzled and irritated by the frequent > >> references > >> > >> > > >> > >> > in your literature to "celebrating" the 40 th anniversaryof your > >> > >> > organisation. Have you thought that that means celebrating 40 years of > >> > >> > failure to find a cure. I hope no subscription money went on parties. > >> > >> > > >> > >> > amanda > >> > >> > > >> > >> > > >> > >> > > >> > >> > > >> > >> > ---------------------------------------------- > >> > >> > This mail sent through http://www.ukonline.net > >> > >> > > >> > >> > ---------------------------------------------------------------------- > >> > >> > To sign-off Parkinsn send a message to: > >> > mailto:[log in to unmask] > >> ca > >> > >> > In the body of the message put: signoff parkinsn > >> > >> > > >> > >> > ---------------------------------------------------------------------- > >> > >> > To sign-off Parkinsn send a message to: > >> > mailto:[log in to unmask] > >> ca > >> > >> > In the body of the message put: signoff parkinsn > >> > >> > > >> > >> > >> > >> > >> > >> > >> > >> > >> > >> ---------------------------------------------- > >> > >> This mail sent through http://www.ukonline.net > >> > >> > >> > >> ---------------------------------------------------------------------- > >> > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> > >> In the body of the message put: signoff parkinsn > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > > > > _________________________________________________________________ > > We want to hear all your funny, exciting and crazy Hotmail stories. Tell > > us now > > http://clk.atdmt.com/UKM/go/195013117/direct/01/ > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------- This mail sent through http://www.ukonline.net ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn