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I had bilateral DBS in 2003.  It not only stopped my tremors but I've never 
had another ocular migraine and I am never depressed and I think I should 
be!!

However, my  speaking difficulty began then and some people don't understand 
that raising my voice does not mean I am angry, but I do get mad when I am 
told to "just calm down" when I do raise my voice.  Recently, I threw a pen 
at my tax guy when he did this and told  him to get on with it.  His wife 
has MS and I had hoped he would be more understanding.

Parkinson's symptoms are very frustrating and the DBS did not make me more 
accepting of them, but one CG told me she thought I was calmer after  DBS.

Ray
Rayilyn Brown
Past Director AZNPF
Arizona Chapter National Parkinson Foundation


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From: "hilary blue" <[log in to unmask]>
Sent: Tuesday, March 09, 2010 9:59 AM
To: <[log in to unmask]>
Subject: Re: Parkinson's impairs emotional communicaton and one treatment 
may make that worse

> i had dbs in april 09 and depending how i am programmed i have different 
> emotional reactions. but can always tell how my care partner feels by the 
> expressions on her face.
>
> i work with an incredibly excellent programmer whom i have seen on five 
> separate occasions, for as much as two hours at a time as she tinkers with 
> the settings to give me the maximum effect. some rejected settings have 
> set me off laughing hysterically and bursting into tears, and feeling that 
> i have lost conrol over my emotions - which incidentally, though i 
> experienced it for very short time, gave me incredible insight into my 
> bipolar daughter 's lack of control of her moodswings.
> but we have settled on a setting that gives me the maximum feedback so 
> that i am feeling better than when i first joined this list nearly 14 or 
> moore years ago.
>
> --- On Mon, 3/8/10, Connie Redekop <[log in to unmask]> wrote:
>
> From: Connie Redekop <[log in to unmask]>
> Subject: Re: Parkinson's impairs emotional communicaton and one treatment 
> may make that worse
> To: [log in to unmask]
> Date: Monday, March 8, 2010, 9:28 AM
>
> My husband had DBS in July/09. It did not affect his ability to read
> emotions, but it certainly made him more emotional.
>
> -----Original Message-----
> From: Parkinson's Information Exchange Network
> [mailto:[log in to unmask]] On Behalf Of Kathryn Temple
> Sent: Monday, March 08, 2010 1:12 AM
> To: [log in to unmask]
> Subject: Re: Parkinson's impairs emotional communicaton and one treatment
> may make that worse
>
> My dad is actually much more sensitive to the emotions of others
> (especially mine!) than he was before he had PD. This may only apply to
> certain people.
>
> Kathy T.
>
> hilary blue wrote:
>> so do i!
>>
>> --- On Sat, 3/6/10, rayilynlee <[log in to unmask]> wrote:
>>
>> From: rayilynlee <[log in to unmask]>
>> Subject: Parkinson's impairs emotional communicaton and one treatment may
> make that worse
>> To: [log in to unmask]
>> Date: Saturday, March 6, 2010, 10:41 PM
>>
>> I disagree with this
>>
>> Ray
>> Rayilyn Brown
>> Past Director AZNPF
>> Arizona Chapter National Parkinson Foundation
>>
>>
>>
>> From: Diane Wyshak
>> Sent: Friday, March 05, 2010 12:21 PM
>> To: ray ; Dr. Kong
>> Subject: Parkinson's impairs emotional communicaton and one treatment may
> make that worse
>>
>>
>>
>> http://news.medill.northwestern.edu/chicago/news.aspx?id=159547
>>
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