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I was very fortunate when my bilateral dbs resulting in greatly enhanced functioning. However, the batteries that were expected to last 5 years barely made it 3 yrs. The battery replacement surgery was not peformed until 2 weeks later anad i immediatesly began to have problems. I could only walk leaning about 30degrees which lead to several. Falls resulted. In the fall of 2008 i developed neuroleptic maligment syndrome. I was in a coma almost 2 months. I would like to anyone who has experienced problems after battery changes or deleoped neuroleptic maligment syndrome. Beverly Forte ----- Original Message ----- From: "Sharon & Jim Le Blanc" <[log in to unmask]> To: <[log in to unmask]> Sent: Thursday, July 31, 2008 10:51 AM Subject: Re: DBS > Things to think about: > 1. If you have both sides done at once your brain swelling will have no > where to go, thus more likely to have brain damage. > 2. Can you and your spouse survive without working again. It has been two > years for us and my spouse still requires 24 hour care. > 3. Are you up for surgery every two to five years to change the batteries > for the rest of your life. > 4. Are you living on one level and can you live that way forever when > things go wrong. > 5 Who is carrying the health insurance, and will you lose it if you can no > longer work. > 6. Can someone in your family or your neurologist or physician watch the > procedure to make sure nothing goes wrong. My husband's implant was placed > in the wrong place. When they turned it on it stimulated the wrong part of > his brain. > 7.Go to rehab after the procedure. It is usually an overnight hospital > stay. It took about a week to realize my husband who was cognitively > independent had not been taking his medication as per usual because he had > damage to his memory. Then he was no longer there at all, mentally that > is. > 8. Find a DBS support group and ask everyone there what MD is good. If > there is no support group, don't go to that hospital. > ----- Original Message ----- > From: "Brian Ely" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, July 30, 2008 7:55 PM > Subject: DBS > > >> I'm interested in getting feedback on DBS, both pro and con. I am >> scheduled >> to undergo surgery in Oct. 26. Thanks Brian >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn