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Beverly, I'm amazed that you developed NMS. Usually that is associated with a sudden removal from psycho or neuro drugs. I'm wondering if you stopped taking any meds before your ordeal began - or was the NMS attributed to your DBS being off. If that is the case, everyone with DBS should be alerted. ---------- Mary Ann (CG Jamie 68/28 with PD, died 11/20/07) www.bentwillowfarm.org >I was very fortunate when my bilateral dbs resulting in greatly enhanced > functioning. However, the batteries that were expected to last 5 years > barely made it 3 yrs. > > The battery replacement surgery was not peformed until 2 weeks later > anad i immediatesly began to have problems. I could only walk leaning > about > 30degrees which lead to several. Falls resulted. In the fall of 2008 i > developed neuroleptic maligment syndrome. I was in a coma almost 2 months. > > I would like to anyone who has experienced problems after battery changes > or > deleoped neuroleptic maligment syndrome. > > Beverly Forte > > ----- Original Message ----- > From: "Sharon & Jim Le Blanc" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Thursday, July 31, 2008 10:51 AM > Subject: Re: DBS > > >> Things to think about: >> 1. If you have both sides done at once your brain swelling will have no >> where to go, thus more likely to have brain damage. >> 2. Can you and your spouse survive without working again. It has been two >> years for us and my spouse still requires 24 hour care. >> 3. Are you up for surgery every two to five years to change the batteries >> for the rest of your life. >> 4. Are you living on one level and can you live that way forever when >> things go wrong. >> 5 Who is carrying the health insurance, and will you lose it if you can >> no >> longer work. >> 6. Can someone in your family or your neurologist or physician watch the >> procedure to make sure nothing goes wrong. My husband's implant was >> placed >> in the wrong place. When they turned it on it stimulated the wrong part >> of >> his brain. >> 7.Go to rehab after the procedure. It is usually an overnight hospital >> stay. It took about a week to realize my husband who was cognitively >> independent had not been taking his medication as per usual because he >> had >> damage to his memory. Then he was no longer there at all, mentally that >> is. >> 8. Find a DBS support group and ask everyone there what MD is good. If >> there is no support group, don't go to that hospital. >> ----- Original Message ----- >> From: "Brian Ely" <[log in to unmask]> >> To: <[log in to unmask]> >> Sent: Wednesday, July 30, 2008 7:55 PM >> Subject: DBS >> >> >>> I'm interested in getting feedback on DBS, both pro and con. I am >>> scheduled >>> to undergo surgery in Oct. 26. Thanks Brian >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn -------------------------------------------------------------------------------- No virus found in this incoming message. Checked by AVG - www.avg.com Version: 9.0.787 / Virus Database: 271.1.1/2736 - Release Date: 03/11/10 02:33:00 ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn