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Ray Rayilyn Brown Past Director AZNPF Arizona Chapter National Parkinson Foundation -------------------------------------------------- From: "Les Combs" <[log in to unmask]> Sent: Saturday, March 20, 2010 8:45 AM To: <[log in to unmask]> Subject: DBS RESULTS -- AN INFORMAL SURVEY > I have Parkinson's disease, and I am considering DBS surgery. I have > searched the Internet to try to find some statistical data about the > probability of positive results versus negative results. I am coming to > you for information. This is an informal survey and is not intended to be > statistically significant. If I get enough responses, I will post an > e-mail on Parkinson listserv. > > If you have had DBS surgery, or your spouse has had it, or a person for > whom you provide caregiving has had it, please respond to the following > questions. Please provide only one response per patient please. > > When was the DBS surgery performed? June and September 2003 (redo of one > side) > > Was the surgery bilateral? Yes > > Did the patient show substantial improvement? Yes > > Did the patient's Parkinson's symptoms become substantially worse? Yes, > but my tremors are still stopped. > > Were the patients Parkinson's symptoms substantially the same? No > > If you feel comfortable doing so, would you please provide me with the > name, phone number, and address of the doctor? Thomas Waltz, my > neurosurgeon at Scripps La Jolla CA died a couple of years ago. > > Please reply to this e-mail. And leave the subject line the same. > > Thank you for any help you can give me. DBS NTs still are controlling my > tremors, but my voice has gotten worse. after 7 years stiffness and poor > balance has increased greatly. However, I don't take any PD meds as they > never helped except on first dose. > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn