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My spouse had bilateral DBS/STN in November of '08. He had his surgery at North Shore University Hospital in Manhassat, Long Island. His surgeon was Dr. Alon Mogilner and the neurologist who worked with him is Dr. Michael Pourfar. Prior to surgery his biggest problem was complete freezing requiring frequent use of a wheelchair. Medications, including the Apokyn injection were no longer working. He was about 56 at time of Parkinson's diagnosis and is now 66. The DBS gave him back his mobility and has controlled a tremor. The main problem has been with the programming of the settings. He was even in a research program for this. It has been hard to reach the window between too much stiffness and dyskinesias. He still requires about the same amount of medications as before surgery. His speech has declined somewhat. The team caring for him has been attentive and available and willing to continue to work with the settings. By the way Yahoo has a group just for DBS, so you might want to check that out. Good Luck! -----Original Message----- From: Les Combs <[log in to unmask]> To: [log in to unmask] Sent: Sat, Mar 20, 2010 11:45 am Subject: DBS RESULTS -- AN INFORMAL SURVEY I have Parkinson's disease, and I am considering DBS surgery. I have searched he Internet to try to find some statistical data about the probability of ositive results versus negative results. I am coming to you for information. his is an informal survey and is not intended to be statistically significant. f I get enough responses, I will post an e-mail on Parkinson listserv. If you have had DBS surgery, or your spouse has had it, or a person for whom you rovide caregiving has had it, please respond to the following questions. Please rovide only one response per patient please. When was the DBS surgery performed? Was the surgery bilateral? Did the patient show substantial improvement? Did the patient's Parkinson's symptoms become substantially worse? Were the patients Parkinson's symptoms substantially the same? If you feel comfortable doing so, would you please provide me with the name, hone number, and address of the doctor? Please reply to this e-mail. And leave the subject line the same. Thank you for any help you can give me. ---------------------------------------------------------------------- o sign-off Parkinsn send a message to: mailto:[log in to unmask] n the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn