thanks for bringing that up!
i just (yesterday) tried to renew my prescription for qualaquine (quinine sulphate) and was amazed and shocked to find that the insert specifically said NOT to use it for nocturnal night cramps as the negative effects outweighed the positive value of the drug..
so i retract all recommendations i have made on the use of quinine for leg cramps, and i am going to stop taking it myself
this is just another example of the superior medical care i receive here in madison, wisconsin as compared with maryland, my g.p. there just went on casually renewing my prescriptions without mentioning any change in directions for use of the drug.
this is also a lesson to myself not to take for granted any instruction for medications etc. my carepartner,who has just retired as a librarian at NLM checked the relevant database for me and backed up everything i have just reported.
and let this be a warning to us all not to regard anything we read online as gospel truth, but to double check with the appropriate authority.
mt apologies if i have inadvertently misled anyone.
hilary
--- On Fri, 4/2/10, Sami <[log in to unmask]> wrote:
From: Sami <[log in to unmask]>
Subject: Re: change of symptoms
To: [log in to unmask]
Date: Friday, April 2, 2010, 8:13 PM
I thought people with heart problems weren't allowed to take quinine. I
didn't know tonic water had quinine in it but if it helps it's worth a try.
Sami
-------Original Message-------
From: hilary blue
Date: 4/1/2010 11:00:33 PM
To: [log in to unmask]
Subject: Re: change of symptoms
for discomfort, and restless legs and cramping of legs in bed, i take
quinine . you can try drinking a glass of tonic water before bed. it
contains quinine.
this is one of the earliest groups of symptoms i had for PD and i
graduated about 4 or 5 years ago to prescription quinine pills. you may
have to argue with the pharmacist if he isnt used to this application for
quinine as they no longer use it much for malaria. but it works for leg
cramps etc
hilary.
p.s. i wear orthotics under my toes to try and counteract the curling
effect.
--- On Tue, 3/30/10, Steve Rack <[log in to unmask]> wrote:
From: Steve Rack <[log in to unmask]>
Subject: Re: change of symptoms
To: [log in to unmask]
Date: Tuesday, March 30, 2010, 8:03 PM
Hi Dirk,
* I've had some symptoms which come and go and sometimes come again. For
several years I had excruciating "toe curling" in my right foot. These
dissipated and were mostly gone for about a year but lately have returned in
a vengence but mostly in my left foot.
* I've noticed a connection between arm swing and cramping in the muscles of
my wrist. Wrist ok, arm swing returns, albeit not a full swing.
* Very recently I began to have difficulties getting comfortable in bed. In
this case I analyzed the mechanics of moving across the bed and relearned
how to change position. I go to sleep with my feet propped against the wall
to keep them from cramping. Once I am asleep my body seems to return to
normal and my feet come back to bed.
* My dysgraphia (sp.) (handwriting) varies with writing tools. Fat pens with
soft grips work well.
It is impossible for me to know which drugs or supplements have roles to
play in these situations. I take Cogenten, and fish oil, magnesium, calcium,
vit.D, CoQ10 and vit,C. It would take years to sort out which substances or
combination of such really works.
-- Steve in VT
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