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after 25 years my best advice is to become an ACTIVIST!!! Sent from Nina's iPhone On Apr 17, 2010, at 1:45 PM, rayilynlee <[log in to unmask]> wrote: > Angie > > Welcome to this club you don't really want to be a member of. I've > had PD 14 years now and as far as I know there is nothing guaranteed > you can take to slow this disease down. I post claims when I find > them. > > Everybody with PD is different as to response to drugs. I've read > that there are a few folks who can take Sinemet w/out side effects > for years. However, it seems they work well for most for about 5 > years. For me, it was only one dose that worked so I don't take > them. 7 years ago I had DBS which stopped my tremors. You will > have to plot your own course. Hopefully you've got a good MDS. One > of my first was a real drug pusher plus being an arrogant, > heartless, p#$%*! > > In the first few years it wasn't so bad, nothing a person couldn't > live with. I exercised on the treadmill for an hour a day and walked > but didn't keep it up. Now I do forced cycling 2 hours daily but > can barely walk at all or talk. > > My advice to newbies is to REALLY GET SERIOUS ABOUT EXERCISE AND > STICK WITH IT!!! I BELIEVE IT IS THE MOST IMPORTANT THING YOU CAN > DO FOR YOURSELF AND IT CAN'T HURT. > > Good luck, Angie. maybe you are young enough to benefit from > improved treatments (but don't count on it). > > Ray > Rayilyn Brown > Past Director AZNPF > Arizona Chapter National Parkinson Foundation > > > -------------------------------------------------- > From: "AW" <[log in to unmask]> > Sent: Friday, April 16, 2010 1:48 PM > To: <[log in to unmask]> > Subject: Re: early diagnosis of PD and drug therapies > >> I have been diagnosed with Parkinson for two years now. I am not on >> any medicationsyet since my symptoms are relatively mild, although >> they have gotten worse lately. >> >> I always thought that I should start drug therapy as late as >> possible because their effectiveness diminishes over time as one >> takes them. Are there drugs that have protective affects? >> >> Angie >> >> >> >> >> --- On Fri, 4/16/10, [log in to unmask] <[log in to unmask]> >> wrote: >> >> From: [log in to unmask] <[log in to unmask]> >> Subject: early diagnosis of PD by voice changes >> To: [log in to unmask] >> Date: Friday, April 16, 2010, 2:31 AM >> >> early diagnosis of PD by >> voice changes: >> http://www.dailymail.co.uk/health/article-1266202/Hope-early-diagnosis-Parkinsons-grows-detection-breakthrough.html >> >> --- >> ------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> >> >> >> >> --- >> ------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn