 |
 |
Sami I don't think Shill and I would get along very well, as I don't think much of her appt policies phoenix is too far for me now Ray -------------------------------------------------- From: "Sami" <[log in to unmask]> Sent: Saturday, June 19, 2010 2:03 PM To: <[log in to unmask]> Subject: Re: Fw: experimentation > Ray, > You're right, but I was referring to the new Ali Center that opened March > 15 > 2010 in the Barrow Neurological Institute. The original Ali Center did > open in the 1990's, but was updated and improved and that made the TV news > in March of this year. http://maprc.com/,gets you to the Barrow Institute > and then the 'Movement Disorder Clinic' on the left takes you to the Ali > Center. Now that you've been here 5-1/2 yrs, won't Holly Shill take you > on? > > Sami > > > > -------Original Message------- > > From: Rayilyn Brown > Date: 6/18/2010 11:47:12 PM > To: [log in to unmask] > Subject: Fw: experimentation > > -------------------------------------------------- > From: "Rayilyn Brown" <[log in to unmask]> > Sent: Friday, June 18, 2010 11:45 PM > To: "Parkinson's Information Exchange Network" > <[log in to unmask]> > Subject: Re: experimentation > >> Sami >> >> I think you are referring to the Barrow Neurological Institute Ali >> Center >> but am not sure. When I first moved here 5-1/2 years ago I had an appt >> with Holly Shill of the Barrow which I had to cancel because my CG was in >> CA and Shill wouldn't take me. Surprise is not too far mile-wise but >> due >> to traffic takes about an hour to get to Phoenix,,,,,,,,, awful in >> summer >> heat. I can't speak well enough to call. >> >> The best neuro I had to write diagnosis for SSD was Dee Silver in San >> Diego CA. He is great and deserves his good reputation. >> >> thanks for suggestion and would be interested to know name of institution >> you are referring to >> >> >> >> --------------------------------------------- >> From: "Sami" <[log in to unmask]> >> Sent: Friday, June 18, 2010 12:57 PM >> To: <[log in to unmask]> >> Subject: Re: experimentation >> >>> Hi Ray, >>> >>> Have you thought about seeing what kind of specialists are available at >>> the >>> new PD clinic/hospital in Phoenix? I'm not sure how far Surprise is from >>> Phoenix but the trip might be worth it since it is a PD facility. If >>> not >>> a >>> trip, at least a phone call might get you headed in the direction you >>> want >>> to go and not in the direction the doctor thinks you ought to go. I >>> have >>> yet to figure out why a doctor thinks he/she knows more about how our >>> own >>> bodies operate since they don't live in our skin. >>> >>> Sami >>> >>> -------Original Message------- >>> >>> From: Rayilyn Brown >>> Date: 6/17/2010 11:00:19 PM >>> To: [log in to unmask] >>> Subject: experimentation >>> >>> my neuro just charged $181 for office visit and $393.00 to read >>> programming >>> device for my NTs. its bad but I wouldn't mind so much if he actually >>> helped me. I doubt if he knows anything about herbal supplements or >>> alternative medicine as he has never suggested them. at least he is >>> savvy >>> re DBS and its not like I have a big choice of neuros in Arizona. >>> >>> to me it is ALL an experiment, just like cancer treatment, and I had >>> "good " >>> oncologists, but they made me keep taking meds I was allergic to. >>> >>> I think I will try one mucuna without asking Dr. Pagano and then tell >>> him >>> what happened. >>> >>> thanks for your input, folks!! >>> >>> Ray >>> Rayilyn Brown >>> Past Director AZNPF >>> Arizona Chapter National Parkinson Foundation >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >>> >>> ---------------------------------------------------------------------- >>> To sign-off Parkinsn send a message to: >>> mailto:[log in to unmask] >>> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn