 |
 |
-------------------------------------------------- From: "Rayilyn Brown" <[log in to unmask]> Sent: Friday, June 18, 2010 11:45 PM To: "Parkinson's Information Exchange Network" <[log in to unmask]> Subject: Re: experimentation > Sami > > I think you are referring to the Barrow Neurological Institute Ali Center > but am not sure. When I first moved here 5-1/2 years ago I had an appt > with Holly Shill of the Barrow which I had to cancel because my CG was in > CA and Shill wouldn't take me. Surprise is not too far mile-wise but due > to traffic takes about an hour to get to Phoenix,,,,,,,,, awful in summer > heat. I can't speak well enough to call. > > The best neuro I had to write diagnosis for SSD was Dee Silver in San > Diego CA. He is great and deserves his good reputation. > > thanks for suggestion and would be interested to know name of institution > you are referring to > > > > --------------------------------------------- > From: "Sami" <[log in to unmask]> > Sent: Friday, June 18, 2010 12:57 PM > To: <[log in to unmask]> > Subject: Re: experimentation > >> Hi Ray, >> >> Have you thought about seeing what kind of specialists are available at >> the >> new PD clinic/hospital in Phoenix? I'm not sure how far Surprise is from >> Phoenix but the trip might be worth it since it is a PD facility. If not >> a >> trip, at least a phone call might get you headed in the direction you >> want >> to go and not in the direction the doctor thinks you ought to go. I have >> yet to figure out why a doctor thinks he/she knows more about how our own >> bodies operate since they don't live in our skin. >> >> Sami >> >> -------Original Message------- >> >> From: Rayilyn Brown >> Date: 6/17/2010 11:00:19 PM >> To: [log in to unmask] >> Subject: experimentation >> >> my neuro just charged $181 for office visit and $393.00 to read >> programming >> device for my NTs. its bad but I wouldn't mind so much if he actually >> helped me. I doubt if he knows anything about herbal supplements or >> alternative medicine as he has never suggested them. at least he is >> savvy >> re DBS and its not like I have a big choice of neuros in Arizona. >> >> to me it is ALL an experiment, just like cancer treatment, and I had >> "good " >> oncologists, but they made me keep taking meds I was allergic to. >> >> I think I will try one mucuna without asking Dr. Pagano and then tell him >> what happened. >> >> thanks for your input, folks!! >> >> Ray >> Rayilyn Brown >> Past Director AZNPF >> Arizona Chapter National Parkinson Foundation >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn