--- On Sat, 6/19/10, Norine Stark <[log in to unmask]> wrote:
From: Norine Stark <[log in to unmask]>
Subject: Re: Fw: Parkinson's Disease Work-Related Disability Assessment Form
To: [log in to unmask]
Date: Saturday, June 19, 2010, 8:08 PM
I wouldln't expect any one form to be able to encompass all the possible
manifestations of symptoms of Parkinson's Disease. I thnk this form was a
good start that shouldb expanded upon . I for one would like to be given
the opportunity to participate in any futurwe discussions on PD and SSA/SSI
benefits. As a retired SSA employee I have experience from both sides of
the desk - 1st as an employee assisting applicantsa complete required
informagtion nee3ded to become entioliteed to beneifits and (2) as an
aplicantg when I filed for beneifts and was awarded at thre intiial filing,
The form will l be field nin a section for non-medical nformation supplied
by applicants and not given much weight unless complerted by the applicant's
trearting neuroligst and accompanied by medical records supportiung the
statem tns made.
Norine Stark
On Fri, Jun 11, 2010 at 2:47 AM, Nic Marais <[log in to unmask]> wrote:
> Great form, but I don't see anything about speech impediment. Also,
> something that I personally had a problem with, is toilet routine.
> Especially with office clothes.
>
> A major issue that is not addressed in the form, is fine motor
> control. I'd hate to be a motor mechanic with PD...
>
> Nic 58/16
>
> On 11 June 2010 07:21, [log in to unmask] <[log in to unmask]> wrote:
> > This looks like it will be a useful tool when applying for Social
> Secueity disability, or planning to apply in the future
> >
> > Forwarded from PAN
> > The Parkinson's Action Network (PAN) is pleased to announce the
> Parkinson's Disease Work-Related Disability Assessment Form. The form is
> available for download on our Web site. (see:
> http://www.parkinsonsaction.org/sites/default/files/InteractivePDDisabilityForm_final.pdfIt has been brought to our attention that people with Parkinson's may
> experience trouble seeking Social Security Disability Insurance (SSDI) or
> Supplemental Security Income (SSI) benefits due to inadequate documentation
> of symptoms in their medical record. This form may be helpful to Social
> Security reviewers during the SSDI/SSI application process. It was created
> with the hope that it will be used by both clinicians and patients as a way
> to document and track a person's symptoms with particular focus on the
> symptoms that are most likely to interfere with one's ability to work. The
> Parkinson's Disease Work-Related Disability Assessment form is designed to
> supplement a patient's medical record and is not a Social Security
> Administration form or application. PAN, together with the other national
> Parkinson's organizations, asks for your help in distributing this form.
> Distributing the form to people living with Parkinson's,
> caregivers/carepartners, doctors, support groups, and online communities is
> essential in assuring that the form makes it into the hands of patients and
> doctors and ultimately into medical records. The form can be downloaded,
> printed, posted on bulletin boards, discussed with doctors or support
> groups, and posted on-line. It is free for all to use. PAN thanks Solvay
> Pharmaceuticals, Inc., now part of Abbott, for their generous support of the
> creation of this important project.
> >
> >
> >
> >
> > ----------------------------------------------------------------------
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> > In the body of the message put: signoff parkinsn
> >
>
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