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Hi Ray, Have you thought about seeing what kind of specialists are available at the new PD clinic/hospital in Phoenix? I'm not sure how far Surprise is from Phoenix but the trip might be worth it since it is a PD facility. If not a trip, at least a phone call might get you headed in the direction you want to go and not in the direction the doctor thinks you ought to go. I have yet to figure out why a doctor thinks he/she knows more about how our own bodies operate since they don't live in our skin. Sami -------Original Message------- From: Rayilyn Brown Date: 6/17/2010 11:00:19 PM To: [log in to unmask] Subject: experimentation my neuro just charged $181 for office visit and $393.00 to read programming device for my NTs. its bad but I wouldn't mind so much if he actually helped me. I doubt if he knows anything about herbal supplements or alternative medicine as he has never suggested them. at least he is savvy re DBS and its not like I have a big choice of neuros in Arizona. to me it is ALL an experiment, just like cancer treatment, and I had "good " oncologists, but they made me keep taking meds I was allergic to. I think I will try one mucuna without asking Dr. Pagano and then tell him what happened. thanks for your input, folks!! Ray Rayilyn Brown Past Director AZNPF Arizona Chapter National Parkinson Foundation ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn