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Ray, You're right, but I was referring to the new Ali Center that opened March 15 2010 in the Barrow Neurological Institute. The original Ali Center did open in the 1990's, but was updated and improved and that made the TV news in March of this year. http://maprc.com/,gets you to the Barrow Institute and then the 'Movement Disorder Clinic' on the left takes you to the Ali Center. Now that you've been here 5-1/2 yrs, won't Holly Shill take you on? Sami -------Original Message------- From: Rayilyn Brown Date: 6/18/2010 11:47:12 PM To: [log in to unmask] Subject: Fw: experimentation -------------------------------------------------- From: "Rayilyn Brown" <[log in to unmask]> Sent: Friday, June 18, 2010 11:45 PM To: "Parkinson's Information Exchange Network" <[log in to unmask]> Subject: Re: experimentation > Sami > > I think you are referring to the Barrow Neurological Institute Ali Center > but am not sure. When I first moved here 5-1/2 years ago I had an appt > with Holly Shill of the Barrow which I had to cancel because my CG was in > CA and Shill wouldn't take me. Surprise is not too far mile-wise but due > to traffic takes about an hour to get to Phoenix,,,,,,,,, awful in summer > heat. I can't speak well enough to call. > > The best neuro I had to write diagnosis for SSD was Dee Silver in San > Diego CA. He is great and deserves his good reputation. > > thanks for suggestion and would be interested to know name of institution > you are referring to > > > > --------------------------------------------- > From: "Sami" <[log in to unmask]> > Sent: Friday, June 18, 2010 12:57 PM > To: <[log in to unmask]> > Subject: Re: experimentation > >> Hi Ray, >> >> Have you thought about seeing what kind of specialists are available at >> the >> new PD clinic/hospital in Phoenix? I'm not sure how far Surprise is from >> Phoenix but the trip might be worth it since it is a PD facility. If not >> a >> trip, at least a phone call might get you headed in the direction you >> want >> to go and not in the direction the doctor thinks you ought to go. I have >> yet to figure out why a doctor thinks he/she knows more about how our own >> bodies operate since they don't live in our skin. >> >> Sami >> >> -------Original Message------- >> >> From: Rayilyn Brown >> Date: 6/17/2010 11:00:19 PM >> To: [log in to unmask] >> Subject: experimentation >> >> my neuro just charged $181 for office visit and $393.00 to read >> programming >> device for my NTs. its bad but I wouldn't mind so much if he actually >> helped me. I doubt if he knows anything about herbal supplements or >> alternative medicine as he has never suggested them. at least he is >> savvy >> re DBS and its not like I have a big choice of neuros in Arizona. >> >> to me it is ALL an experiment, just like cancer treatment, and I had >> "good " >> oncologists, but they made me keep taking meds I was allergic to. >> >> I think I will try one mucuna without asking Dr. Pagano and then tell him >> what happened. >> >> thanks for your input, folks!! >> >> Ray >> Rayilyn Brown >> Past Director AZNPF >> Arizona Chapter National Parkinson Foundation >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn