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Ray, I am glad the terrible time is behind you.  It is good to have you
back.
Moneesha

On 25 August 2010 06:39, Rayilyn Brown <[log in to unmask]> wrote:

> Dear Friends and Relatives
>
> For the past 3 weeks I've endured the worst medical ordeal of my life,
>  worse than ovarian cancer and arterio-venous fistulas.  My stimulators
> started dying before then, at end of June but my neurologist thought they
> were OK.  Week of August 10 Teresa left for Bolivia and her daughter
> Patricia (just graduated physician's assistant school) took me to see Dr.
> Pagano's replacement  for vacation.  He didn't know beans about programming,
> so we got Medtronic programmers to come to Pagano's office the following
> Monday.  They confirmed that one stimulator was dead, the other one dying.
>  We got appt with Dr. Pootraluk the following Friday and surgery scheduled
> for Monday August 23rd.
>
> Advanced Parkinson symptoms were full blown; I could barely move and shook
> constantly and my blood pressure has been out of control.  The symptoms are
> always with me, it is just a matter of degree.   Now that I've got new
> stimulators I am working my way back to my old "normal" which is why even
> emailing was impossible.
>
> A special thanks to Meg, Sami, Tess and everyone who offered help and
> encouragement.
>
> As if I needed to be reminded -- Parkinson's is a horrid, diabolical
> disease.   And no, I wouldn't wish it on my worst enemy.
>
> Thanks again.
>
> Ray
> Rayilyn Brown
> Past Director AZNPF
> Arizona Chapter National Parkinson Foundation
>
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