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Ray,

So glad to hear your stimulators were successfully reprogrammed. The list is
not the same when you're not there. Missed you!

Kathleen

On 25 August 2010 04:39, Kathryn Temple <[log in to unmask]> wrote:

> Dear Ray,
>
> I am so glad you are back after this horrible ordeal. We were all worried.
> You are very resilient in the face of this.
>
> Thinking of you,
> Kathy T.
>
>
> Rayilyn Brown wrote:
>
>> Dear Friends and Relatives
>>
>> For the past 3 weeks I've endured the worst medical ordeal of my life,
>>  worse than ovarian cancer and arterio-venous fistulas.  My stimulators
>> started dying before then, at end of June but my neurologist thought they
>> were OK.  Week of August 10 Teresa left for Bolivia and her daughter
>> Patricia (just graduated physician's assistant school) took me to see Dr.
>> Pagano's replacement  for vacation.  He didn't know beans about programming,
>> so we got Medtronic programmers to come to Pagano's office the following
>> Monday.  They confirmed that one stimulator was dead, the other one dying.
>>  We got appt with Dr. Pootraluk the following Friday and surgery scheduled
>> for Monday August 23rd.
>>
>> Advanced Parkinson symptoms were full blown; I could barely move and shook
>> constantly and my blood pressure has been out of control.  The symptoms are
>> always with me, it is just a matter of degree.   Now that I've got new
>> stimulators I am working my way back to my old "normal" which is why even
>> emailing was impossible.
>>
>> A special thanks to Meg, Sami, Tess and everyone who offered help and
>> encouragement.
>>
>> As if I needed to be reminded -- Parkinson's is a horrid, diabolical
>> disease.   And no, I wouldn't wish it on my worst enemy.
>>
>> Thanks again.
>>
>> Ray
>> Rayilyn Brown
>> Past Director AZNPF
>> Arizona Chapter National Parkinson Foundation
>>
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