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Thank you Ray, not only for surviving, but for sharing with us your ordeal. You mean so much to this listserv. I hope you have a comfortable and successful recovery. Rick McGirr -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of Rayilyn Brown Sent: Tuesday, August 24, 2010 9:10 PM To: [log in to unmask] Subject: I'll die another day Dear Friends and Relatives For the past 3 weeks I've endured the worst medical ordeal of my life, worse than ovarian cancer and arterio-venous fistulas. My stimulators started dying before then, at end of June but my neurologist thought they were OK. Week of August 10 Teresa left for Bolivia and her daughter Patricia (just graduated physician's assistant school) took me to see Dr. Pagano's replacement for vacation. He didn't know beans about programming, so we got Medtronic programmers to come to Pagano's office the following Monday. They confirmed that one stimulator was dead, the other one dying. We got appt with Dr. Pootraluk the following Friday and surgery scheduled for Monday August 23rd. Advanced Parkinson symptoms were full blown; I could barely move and shook constantly and my blood pressure has been out of control. The symptoms are always with me, it is just a matter of degree. Now that I've got new stimulators I am working my way back to my old "normal" which is why even emailing was impossible. A special thanks to Meg, Sami, Tess and everyone who offered help and encouragement. As if I needed to be reminded -- Parkinson's is a horrid, diabolical disease. And no, I wouldn't wish it on my worst enemy. Thanks again. Ray Rayilyn Brown Past Director AZNPF Arizona Chapter National Parkinson Foundation ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn