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Thank God (if there is one).  I wish I could've helped, but there's not much 
can be done from this distance - though I do a good nag.
Amanda

Quoting Rayilyn Brown <[log in to unmask]>:

> Dear Friends and Relatives
> 
> For the past 3 weeks I've endured the worst medical ordeal of my life,  worse
> than ovarian cancer and arterio-venous fistulas.  My stimulators started
> dying before then, at end of June but my neurologist thought they were OK. 
> Week of August 10 Teresa left for Bolivia and her daughter Patricia (just
> graduated physician's assistant school) took me to see Dr. Pagano's
> replacement  for vacation.  He didn't know beans about programming, so we got
> Medtronic programmers to come to Pagano's office the following Monday.  They
> confirmed that one stimulator was dead, the other one dying.  We got appt
> with Dr. Pootraluk the following Friday and surgery scheduled for Monday
> August 23rd.
> 
> Advanced Parkinson symptoms were full blown; I could barely move and shook
> constantly and my blood pressure has been out of control.  The symptoms are
> always with me, it is just a matter of degree.   Now that I've got new
> stimulators I am working my way back to my old "normal" which is why even
> emailing was impossible.
> 
> A special thanks to Meg, Sami, Tess and everyone who offered help and
> encouragement.
> 
> As if I needed to be reminded -- Parkinson's is a horrid, diabolical disease.
>   And no, I wouldn't wish it on my worst enemy.
> 
> Thanks again.
> 
> Ray
> Rayilyn Brown
> Past Director AZNPF
> Arizona Chapter National Parkinson Foundation
> 
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