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Bless you Ray.  Love you!  Meg









-----Original Message-----
From: Rayilyn Brown <[log in to unmask]>
To: PARKINSN <[log in to unmask]>
Sent: Wed, Aug 25, 2010 1:00 am
Subject: I'll die another day


Dear Friends and Relatives
For the past 3 weeks I've endured the worst medical ordeal of my life,  worse 
han ovarian cancer and arterio-venous fistulas.  My stimulators started dying 
efore then, at end of June but my neurologist thought they were OK.  Week of 
ugust 10 Teresa left for Bolivia and her daughter Patricia (just graduated 
hysician's assistant school) took me to see Dr. Pagano's replacement  for 
acation.  He didn't know beans about programming, so we got Medtronic 
rogrammers to come to Pagano's office the following Monday.  They confirmed 
hat one stimulator was dead, the other one dying.  We got appt with Dr. 
ootraluk the following Friday and surgery scheduled for Monday August 23rd.
Advanced Parkinson symptoms were full blown; I could barely move and shook 
onstantly and my blood pressure has been out of control.  The symptoms are 
lways with me, it is just a matter of degree.   Now that I've got new 
timulators I am working my way back to my old "normal" which is why even 
mailing was impossible.
A special thanks to Meg, Sami, Tess and everyone who offered help and 
ncouragement.
As if I needed to be reminded -- Parkinson's is a horrid, diabolical disease.   
nd no, I wouldn't wish it on my worst enemy.
Thanks again.
Ray
ayilyn Brown
ast Director AZNPF
rizona Chapter National Parkinson Foundation
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