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Dear Ray

 

All of us are praying for your health. Happy to know that you are getting better again. 

 

NK


 
> Date: Wed, 25 Aug 2010 19:46:01 -0700
> From: [log in to unmask]
> Subject: Re: I'll die another day
> To: [log in to unmask]
> 
> thanks Kathryn and everyone who emailed me . sorry I couldn't answer all 
> emails.
> 
> --------------------------------------------------
> From: "Kathryn Temple" <[log in to unmask]>
> Sent: Wednesday, August 25, 2010 1:39 AM
> To: <[log in to unmask]>
> Subject: Re: I'll die another day
> 
> > Dear Ray,
> >
> > I am so glad you are back after this horrible ordeal. We were all worried. 
> > You are very resilient in the face of this.
> >
> > Thinking of you,
> > Kathy T.
> >
> > Rayilyn Brown wrote:
> >> Dear Friends and Relatives
> >>
> >> For the past 3 weeks I've endured the worst medical ordeal of my life, 
> >> worse than ovarian cancer and arterio-venous fistulas. My stimulators 
> >> started dying before then, at end of June but my neurologist thought they 
> >> were OK. Week of August 10 Teresa left for Bolivia and her daughter 
> >> Patricia (just graduated physician's assistant school) took me to see Dr. 
> >> Pagano's replacement for vacation. He didn't know beans about 
> >> programming, so we got Medtronic programmers to come to Pagano's office 
> >> the following Monday. They confirmed that one stimulator was dead, the 
> >> other one dying. We got appt with Dr. Pootraluk the following Friday and 
> >> surgery scheduled for Monday August 23rd.
> >>
> >> Advanced Parkinson symptoms were full blown; I could barely move and 
> >> shook constantly and my blood pressure has been out of control. The 
> >> symptoms are always with me, it is just a matter of degree. Now that 
> >> I've got new stimulators I am working my way back to my old "normal" 
> >> which is why even emailing was impossible.
> >>
> >> A special thanks to Meg, Sami, Tess and everyone who offered help and 
> >> encouragement.
> >>
> >> As if I needed to be reminded -- Parkinson's is a horrid, diabolical 
> >> disease. And no, I wouldn't wish it on my worst enemy.
> >>
> >> Thanks again.
> >>
> >> Ray
> >> Rayilyn Brown
> >> Past Director AZNPF
> >> Arizona Chapter National Parkinson Foundation
> >>
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