 |
 |
Hi Ray, What do you mean you haven't gotten your life back? Is it due to the fact that you are still monitoring the electrodes and still taking medication or is your body physically still affected by the PD. I do apologize if the question is a bit ignorant but I'd truly like to know how successful the surgery was. I also do understand that the surgery has different effects on different people buts its nice to know the different effects so that you develop an expectation...? Thanks Tony -----Original Message----- From: Rayilyn Brown <[log in to unmask]> To: PARKINSN <[log in to unmask]> Sent: Mon, Sep 13, 2010 8:00 am Subject: Re: Intoduction and Deep Brain stimulation Pat I had mine done at Scripps Clinic in La Jolla CA in 2003. My neurosurgeon as Dr. Thomas Waltz. Sadly, he died a couple of years ago. cripps has a great program, I think. I actually had two DBSs. One side as redone as he wasn't happy with placement of electrodes. I haven't gotten my life back, but these procedures have allowed me to xist. And boy was I reminded about a month ago what I'm like without it. Ray -------------------------------------------------- rom: "Nursepyn2" <[log in to unmask]> ent: Sunday, September 12, 2010 8:43 AM o: <[log in to unmask]> ubject: Re: Intoduction and Deep Brain stimulation > Thanks Rayilyn, for responding to "DBS Surgery", any information we can obtain will be helpful. Where did you have yours done and who was your neurosurgeon? Thank you so much for all you do for the Pd community. Pat P. -----Original Message----- From: Rayilyn Brown <[log in to unmask]> To: PARKINSN <[log in to unmask]> Sent: Sun, Sep 12, 2010 2:00 am Subject: Re: Intoduction and Deep Brain stimulation Tony I had 2 bilateral DBSs in 2003 and last month got a taste and reminder of what life is like for me without it when my stimulators died. I never got relief from medication, so it was a lifesaver for me; however, if meds had worked I doubt I would have had it done. People get different results so you need to decide for yourself. I want a cure in the form of a vaccine. Good luck. -------------------------------------------------- From: <[log in to unmask]> Sent: Friday, September 10, 2010 8:11 AM To: <[log in to unmask]> Subject: Re: Intoduction and Deep Brain stimulation > > > Hi Tony. There is a group on yahoo dedicated solely to DBS surgery. It > is [log in to unmask] (mailto:[log in to unmask]) . > I'm > nowhere near having DBS but I like to keep up to date with what is going > on > in the field. Let us know how you make out. > > Roberta Innarella > > > > Father God, Today I am afraid. I look around me at this world that is > changing so fast and I feel lost like a small boat in the midst of a > storm. I > am not built to weather the battering waves or the howling wind. So I > wait > now in your presence. You spoke the oceans and the four winds into being. > You threw the stars in the sky and separated the sea from dry land. You > took > the hand of Peter who was sinking into the depths of the water and walked > him to safety. I choose now to fix my eyes on you and not on the storm. I > settle my heart on your love and not on the current that threatens to pull > me under. Thank you that you are my firm anchor even through the darkest > night, Amen > > > In a message dated 9/10/2010 2:10:09 A.M. Eastern Daylight Time, > [log in to unmask] writes: > > Hi my name is Tony Duarte I have had PD for 21 years. We found your > support group via a few google searches and thought it would be a great > idea to > chat to other people with PD. > > I am particularly interested in the Deep Brain stimulation surgery. Has > anyone done this procedure? If so what were the results of the surgery > and > would you recommend it. > > Kind regards > Tony > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- o sign-off Parkinsn send a message to: mailto:[log in to unmask] n the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn