House Takes First Step to Make Better PD Data a Reality!
From: Parkinson's Action Network
Sent: Thursday, September 16, 2010 3:03 PM
To: Rayilyn Brown
Subject: House Takes First Step to Make Better PD Data a Reality!
Voice your support for better Parkinson's data!
Today, the House Energy & Commerce Health Subcommittee marked-up and passed H.R. 1362, the National MS and Parkinson's Disease Registries Act. During the Subcommittee mark-up, Dr. Burgess (R-TX), co-author of the legislation, offered an amendment to expand the bill to become the National Neurological Diseases Surveillance System Act. The expanded bill now goes to the full Energy & Commerce Committee for consideration.
What will the expanded bill do?
The expanded legislation will establish a national data surveillance system that will track and collect data on the epidemiology, incidence, prevalence, and other factors of neurological diseases, including Parkinson's and Multiple Sclerosis (MS). In order to build the best system possible for researchers and to use funding wisely, it was recommended by the Centers for Disease Control and Prevention (CDC) that the data system not only include Parkinson's and MS but also be opened to all neurological diseases. Learn more about the bill.
We estimate that over one million Americans are living with Parkinson's disease but that figure is just a rough estimate. This lack of core knowledge inhibits Parkinson's research, treatments, programs, and services. Better data will fuel scientific inquiry and will advance our understanding of how to treat and support the Parkinson's community.
What can you do to help?
We expect action in the full Committee as soon as next week, so your Representative needs to hear from you. Once through the full Committee, the bill has the chance of getting to the House floor for a vote-make sure your Member knows that the Parkinson's community supports this importation legislation.
Thank you for your continuous support. Take action today by e-mailing your Representative in support of H.R. 1362.
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