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Are you including individual settings? What meds were taken and when. When awake and when sleeping When protein is eaten. When there has been a bowel movement. All have an effect Sent from Nina's iPhone On Sep 27, 2010, at 12:46 PM, Meg Duggan <[log in to unmask]> wrote: > Hi Everybody - Our PD on/off log should be up and running in the next two weeks. (Beta testers - you'll have a link this week I hope!) Anyway, it occurs to me that we could easily modify the on/off log for DBS to give programmers and neuros a crystal clear view of what is going on. I'm thinking we should add some questions about headaches, and about the random electrical pulses some of you have experienced. Can you guys weigh in and tell me what would be useful information for your programmer/medical professional to understand re DBS changes, symptoms and problems? Thanks everyone! Meg > > > > > -----Original Message----- > From: Lindy Ashford <[log in to unmask]> > To: PARKINSN <[log in to unmask]> > Sent: Mon, Sep 27, 2010 1:47 am > Subject: Re: DBS for migraines > > > Migraines from about 35 till dx at 52, last few months before going onto > inemet were almost daily, > ith aura and headache - they disappeared for several years and have had > nly about 3 or 4 in the > ast couple of years as wearing off has become more obvious. > indy > On Mon, Sep 27, 2010 at 5:28 AM, Moneesha Sharma > [log in to unmask]>wrote: >> Prem had migraines - sometimes very severe - from his mid-20s, but the last > bout - a bad one - was when he was 50 which we put down to a reaction to a > sugar substitute that he tried. The migraines stopped when he stopped the > sugar substitute. He was diagnosed with PD when he was 56. > Moneesha > > > On 18 September 2010 07:00, Rayilyn Brown <[log in to unmask]> wrote: > >> Coincidentally, DBS stopped my ocular migraines; I used to have both the >> aura and headache, since my 30's only the aura. I think there may be a > PD >> connection; my grandfather had both migraines and PD. >> >> Anybody else with PD also have or had migraines? >> >> >> > http://www.marketwatch.com/story/newly-published-data-show-occipital-nerve-stimulation-may-be-a-promising-new-therapy-for-chronic-migraine-2010-09-17?reflink=MW_news_stmp >> >> >> Ray >> Rayilyn Brown >> Past Director AZNPF >> Arizona Chapter National Parkinson Foundation >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: mailto: >> [log in to unmask] >> In the body of the message put: signoff parkinsn >> > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto: > [log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > o sign-off Parkinsn send a message to: mailto:[log in to unmask] > n the body of the message put: signoff parkinsn > > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn