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like all your ideas, brilliant!! the only downside is the motorized pedals would eat up the wheelchair battery; however, if you have a "manual" it wouldn't be an issue. great idea, Amanda!! Ray -------------------------------------------------- From: <[log in to unmask]> Sent: Tuesday, October 19, 2010 11:27 AM To: <[log in to unmask]> Subject: Re: bikes & batteries > Why not a wheelchair with pedals ? > Lots of people, who can use their legs but find walking a struggle (like > me) > would find that handy. > anybody know of such a thing? > > Quoting Rayilyn Brown <[log in to unmask]>: > >> yes, I know, although they cannot tell exactly there is a formula they >> can >> use. I'm confident my new neuro can handle it, unlike my old one. >> >> my "bike" just has motorized pedals. I pull up to it in my wheelchair >> and >> watch TV while it helps me pedal. >> >> -------------------------------------------------- >> From: "Marti Coleman" <[log in to unmask]> >> Sent: Sunday, October 17, 2010 4:44 PM >> To: <[log in to unmask]> >> Subject: Re: New member >> >> > Your neurologist/DBS person should be able to see how much battery you >> > have left >> > at any given time so that you are not put in a position where the >> > battery >> > dies >> > and you are without stimulation. The battery gets used up depending >> > upon >> > how >> > high your voltage is, and they can measure that. >> > >> > >> > By the way, I assume when you say "forced cycling" that you mean >> > stationary >> > biking? >> > >> > >> > >> > >> > >> > ________________________________ >> > From: Rayilyn Brown <[log in to unmask]> >> > To: [log in to unmask] >> > Sent: Sat, October 16, 2010 8:09:48 AM >> > Subject: Re: New member >> > >> > It is the batteries that die; the neurostimulators are in my brain; >> > sorry, >> >> > I >> > have to get new batteries every 3 years now. This whole treatment is >> > so >> > hard >> > to explain to people I've gotten mixed up on what I call stuff. >> > >> > I do forced cycling for 2 hours a day and after a year and a half have >> > lost >> > about 12 lbs. >> > >> > -------------------------------------------------- >> > From: "Marti Coleman" <[log in to unmask]> >> > Sent: Friday, October 15, 2010 6:46 AM >> > To: <[log in to unmask]> >> > Subject: Re: New member >> > >> >> I take the regular C/L now, although I've tried all of them at one >> >> time >> >> or >> >> another. I get nauseous, too, but I don't see any alternative. >> >> Thanks >> >> for >> > the >> >> tip about ginger ale--I've tried that before, but maybe I'll try it >> >> again. I'm >> >> sorry you have had trouble with your DBS-what makes the stimulators >> >> stop >> >> working? I thought the battery rook care of that. You are not >> >> alone--we >> >> >> have >> >>a >> >> small support group in Bloomington, IN, and there is one other person >> >> besides >> >> myself who has had DBS, and he is not doing well at all. I hope the >> >> reprogramming helps you. It just goes to show how very individualized >> >> this >> >> disease is. I wish my meds would help ME lose weight!! >> >> >> >> >> >> >> >> >> >> ________________________________ >> >> From: Rayilyn Brown <[log in to unmask]> >> >> To: [log in to unmask] >> >> Sent: Thu, October 14, 2010 9:52:07 PM >> >> Subject: Re: New member >> >> >> >> Hi Marti >> >> >> >> I had 2 DBS in 2003 (one was redo of one side) at age 67. I've had >> >> the >> >> stimulators replaced twice now. I never took PD meds much as they >> >> didn't >> > seem >> >> to help, but when I "crashed" when my stimulators died in August >> >> carbidopa/levadopa enabled me to move a little. My new neuro gave me >> >> CR >> >> carbi/leva but I 'm waiting to try it again after I stabilize after >> >> some >> >> reprogramming. Do you take the regular C/L or do you have the >> >> controlled >> >> release kind? it gives me slight nausea but helps me lose weight. >> >> my >> >> neuro >> >> said to drink ginger ale. >> >> >> >> Although I can barely speak, at least I can move and don't tremor. >> >> I'm a >> >> >> big >> >> DBS booster but I guess some PWPs have not had good results. >> >> >> >> -------------------------------------------------- >> >> From: "Marti Coleman" <[log in to unmask]> >> >> Sent: Wednesday, October 13, 2010 4:35 PM >> >> To: <[log in to unmask]> >> >> Subject: New member >> >> >> >>> Hi all!! I was a member of this group several years ago but let my >> > membership >> >>> lapse because I didn't have time to read all the input. Now I'm >> >>> semi-retired >> >>> and think maybe I can keep up with it. >> >>> >> >>> >> >>> I am a 61 year old female, and this is my 24th year with Parkinson's. >> >>> Two and >> >>> a >> >>> half years ago, I had the deep brain stimulation operation on both >> >>> sides >> >> >>> of >> > my >> >>> brain. I still take carbidopa/levadopa 10 /100 and Amantadine, but I >> >>> quit >> >>> everything else cold turkey because the meds were making me feel sick >> >>> all the >> >>> time. I've tried just about everything in the arsenal of meds during >> >>> my >> >> >>> 24 >> >>> years with PD, but for now this combination seems to be adequate. I >> >>> would >> >>> encourage anyone who is interested to look into DBS seriously, as it >> >>> has >> >>> definitely proven helpful to me. >> >>> >> >>> >> >>> I would welcome any questions about the operation, or anything else >> >>> for >> >>> that >> >>> matter. >> >>> >> >>> Thanks for listening. >> >>> >> >>> Marti Coleman >> >>> Bloomington, Indiana >> >>> >> >>> ---------------------------------------------------------------------- >> >>> To sign-off Parkinsn send a message to: >> >>> mailto:[log in to unmask] >> >>> In the body of the message put: signoff parkinsn >> >> >> >> ---------------------------------------------------------------------- >> >> To sign-off Parkinsn send a message to: >> >> mailto:[log in to unmask] >> >> In the body of the message put: signoff parkinsn >> >> >> >> >> >> ---------------------------------------------------------------------- >> >> To sign-off Parkinsn send a message to: >> >> mailto:[log in to unmask] >> >> In the body of the message put: signoff parkinsn >> > >> > ---------------------------------------------------------------------- >> > To sign-off Parkinsn send a message to: >> > mailto:[log in to unmask] >> > In the body of the message put: signoff parkinsn >> > >> > >> > ---------------------------------------------------------------------- >> > To sign-off Parkinsn send a message to: >> > mailto:[log in to unmask] >> > In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> > > > > > ---------------------------------------------- > This mail sent through http://www.ukonline.net > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn