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Why not a wheelchair with pedals ? Lots of people, who can use their legs but find walking a struggle (like me) would find that handy. anybody know of such a thing? Quoting Rayilyn Brown <[log in to unmask]>: > yes, I know, although they cannot tell exactly there is a formula they can > use. I'm confident my new neuro can handle it, unlike my old one. > > my "bike" just has motorized pedals. I pull up to it in my wheelchair and > watch TV while it helps me pedal. > > -------------------------------------------------- > From: "Marti Coleman" <[log in to unmask]> > Sent: Sunday, October 17, 2010 4:44 PM > To: <[log in to unmask]> > Subject: Re: New member > > > Your neurologist/DBS person should be able to see how much battery you > > have left > > at any given time so that you are not put in a position where the battery > > dies > > and you are without stimulation. The battery gets used up depending upon > > how > > high your voltage is, and they can measure that. > > > > > > By the way, I assume when you say "forced cycling" that you mean > > stationary > > biking? > > > > > > > > > > > > ________________________________ > > From: Rayilyn Brown <[log in to unmask]> > > To: [log in to unmask] > > Sent: Sat, October 16, 2010 8:09:48 AM > > Subject: Re: New member > > > > It is the batteries that die; the neurostimulators are in my brain; sorry, > > > I > > have to get new batteries every 3 years now. This whole treatment is so > > hard > > to explain to people I've gotten mixed up on what I call stuff. > > > > I do forced cycling for 2 hours a day and after a year and a half have > > lost > > about 12 lbs. > > > > -------------------------------------------------- > > From: "Marti Coleman" <[log in to unmask]> > > Sent: Friday, October 15, 2010 6:46 AM > > To: <[log in to unmask]> > > Subject: Re: New member > > > >> I take the regular C/L now, although I've tried all of them at one time > >> or > >> another. I get nauseous, too, but I don't see any alternative. Thanks > >> for > > the > >> tip about ginger ale--I've tried that before, but maybe I'll try it > >> again. I'm > >> sorry you have had trouble with your DBS-what makes the stimulators stop > >> working? I thought the battery rook care of that. You are not alone--we > > >> have > >>a > >> small support group in Bloomington, IN, and there is one other person > >> besides > >> myself who has had DBS, and he is not doing well at all. I hope the > >> reprogramming helps you. It just goes to show how very individualized > >> this > >> disease is. I wish my meds would help ME lose weight!! > >> > >> > >> > >> > >> ________________________________ > >> From: Rayilyn Brown <[log in to unmask]> > >> To: [log in to unmask] > >> Sent: Thu, October 14, 2010 9:52:07 PM > >> Subject: Re: New member > >> > >> Hi Marti > >> > >> I had 2 DBS in 2003 (one was redo of one side) at age 67. I've had the > >> stimulators replaced twice now. I never took PD meds much as they > >> didn't > > seem > >> to help, but when I "crashed" when my stimulators died in August > >> carbidopa/levadopa enabled me to move a little. My new neuro gave me CR > >> carbi/leva but I 'm waiting to try it again after I stabilize after some > >> reprogramming. Do you take the regular C/L or do you have the > >> controlled > >> release kind? it gives me slight nausea but helps me lose weight. my > >> neuro > >> said to drink ginger ale. > >> > >> Although I can barely speak, at least I can move and don't tremor. I'm a > > >> big > >> DBS booster but I guess some PWPs have not had good results. > >> > >> -------------------------------------------------- > >> From: "Marti Coleman" <[log in to unmask]> > >> Sent: Wednesday, October 13, 2010 4:35 PM > >> To: <[log in to unmask]> > >> Subject: New member > >> > >>> Hi all!! I was a member of this group several years ago but let my > > membership > >>> lapse because I didn't have time to read all the input. Now I'm > >>> semi-retired > >>> and think maybe I can keep up with it. > >>> > >>> > >>> I am a 61 year old female, and this is my 24th year with Parkinson's. > >>> Two and > >>> a > >>> half years ago, I had the deep brain stimulation operation on both sides > > >>> of > > my > >>> brain. I still take carbidopa/levadopa 10 /100 and Amantadine, but I > >>> quit > >>> everything else cold turkey because the meds were making me feel sick > >>> all the > >>> time. I've tried just about everything in the arsenal of meds during my > > >>> 24 > >>> years with PD, but for now this combination seems to be adequate. I > >>> would > >>> encourage anyone who is interested to look into DBS seriously, as it has > >>> definitely proven helpful to me. > >>> > >>> > >>> I would welcome any questions about the operation, or anything else for > >>> that > >>> matter. > >>> > >>> Thanks for listening. > >>> > >>> Marti Coleman > >>> Bloomington, Indiana > >>> > >>> ---------------------------------------------------------------------- > >>> To sign-off Parkinsn send a message to: > >>> mailto:[log in to unmask] > >>> In the body of the message put: signoff parkinsn > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > >> > >> > >> ---------------------------------------------------------------------- > >> To sign-off Parkinsn send a message to: > >> mailto:[log in to unmask] > >> In the body of the message put: signoff parkinsn > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > > > > > ---------------------------------------------------------------------- > > To sign-off Parkinsn send a message to: > > mailto:[log in to unmask] > > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > ---------------------------------------------- This mail sent through http://www.ukonline.net ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn