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I take the regular C/L now, although I've tried all of them at one time or another. I get nauseous, too, but I don't see any alternative. Thanks for the tip about ginger ale--I've tried that before, but maybe I'll try it again. I'm sorry you have had trouble with your DBS-what makes the stimulators stop working? I thought the battery rook care of that. You are not alone--we have a small support group in Bloomington, IN, and there is one other person besides myself who has had DBS, and he is not doing well at all. I hope the reprogramming helps you. It just goes to show how very individualized this disease is. I wish my meds would help ME lose weight!! ________________________________ From: Rayilyn Brown <[log in to unmask]> To: [log in to unmask] Sent: Thu, October 14, 2010 9:52:07 PM Subject: Re: New member Hi Marti I had 2 DBS in 2003 (one was redo of one side) at age 67. I've had the stimulators replaced twice now. I never took PD meds much as they didn't seem to help, but when I "crashed" when my stimulators died in August carbidopa/levadopa enabled me to move a little. My new neuro gave me CR carbi/leva but I 'm waiting to try it again after I stabilize after some reprogramming. Do you take the regular C/L or do you have the controlled release kind? it gives me slight nausea but helps me lose weight. my neuro said to drink ginger ale. Although I can barely speak, at least I can move and don't tremor. I'm a big DBS booster but I guess some PWPs have not had good results. -------------------------------------------------- From: "Marti Coleman" <[log in to unmask]> Sent: Wednesday, October 13, 2010 4:35 PM To: <[log in to unmask]> Subject: New member > Hi all!! I was a member of this group several years ago but let my membership > lapse because I didn't have time to read all the input. Now I'm semi-retired > and think maybe I can keep up with it. > > > I am a 61 year old female, and this is my 24th year with Parkinson's. Two and >a > half years ago, I had the deep brain stimulation operation on both sides of my > brain. I still take carbidopa/levadopa 10 /100 and Amantadine, but I quit > everything else cold turkey because the meds were making me feel sick all the > time. I've tried just about everything in the arsenal of meds during my 24 > years with PD, but for now this combination seems to be adequate. I would > encourage anyone who is interested to look into DBS seriously, as it has > definitely proven helpful to me. > > > I would welcome any questions about the operation, or anything else for that > matter. > > Thanks for listening. > > Marti Coleman > Bloomington, Indiana > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn