 |
 |
Thanks for filling outo the questionnaire, Pam. You said that prior to DBS you were always falling. Isn't it strange how treatments affect people so differently. In most cases the people that I have known said falling got worse with DBS. Go figure. Peggy -----Original Message----- From: Parkinson's Information Exchange Network [mailto:[log in to unmask]] On Behalf Of Pam Robillard Sent: Monday, October 25, 2010 9:34 AM To: [log in to unmask] Subject: Re: Do you have Pain with Parkinson's? Peggy I have had Parkinson's for 20 years. I have never had much pain, but several people have told me that I had a high tolerance for pain. I had DBS in February 2009 which was hugh success. Prior to that I was constantly falling. Most of the time the falling was on concrete and lucky enough I didn't break any bones and also didn't have much pain when I fell. Pam Robillard On Oct 24, 2010, at 10:37 AM, Steve Rack wrote: >> I am writing an article about pain with Parkinson's and need your >> help. Would >> as many of you as possible answer a few questions and return to me by >> November 1, 2010? You may cut and paste the info below online in >> your reply >> to this thread, or send me a Private Message with the informtion. >> Thank you - >> all information will be kept confidential, and your name will not >> be identified at >> all; not even with your responses: >> Peggy >> >> ---------cut below here and return or paste info in your reply >> ----------- >> >> >> PAIN QUESTIONNAIRE >> >> 1. Do you have pain that accompanies or is a result of your >> Parkinson's >> symptoms? >> >> __X_ Yes ___ No > > > >> 2. Where is your pain located? (Please be as descriptive as possible) >> >> >> FEET AND CALF MUSCLES > > >> >> >> 3. Does the pain get disabling enough that you take medication or >> do some >> other therapy for relief? >> >> __X_ Yes ___ No > > PT TWICE A WEEK, STRETCHING, WALKING >> >> >> 4. How long have you been diagnosed with Parkinson's? >> ____ days ____ months __6__ years >> >> 5. Do you believe, or has your doctor told you that the pain is >> due to your >> Parkinson's? >> >> __X_ Yes ___ No > > DYSTONIA > >> >> 6. Do you believe or have you been told the pain is due to a >> medication you >> have taken long term for Parkinson's? >> >> ___ Yes __X_ No >> >> 7. On a scale of 1-5 (with 5 being the most severe), how would you >> rate your >> pain most of the time? >> >> 1 ___ 2 ___ 3 _X__ 4 ___ 5 ___ >> >> 8. Have you been told that you have or have you ever been >> diagnosed with >> any of the following (if associated with your site of pain) ? >> Check all that >> apply: >> >> Fibromyalgia ____ Dystonia __X__ Severe dyskinesia ____ >> >> Degenerative disc disease or herniated disc _____ Arthritis _____ >> >> Spinal cord injury ____ Spinal stenosis ____ Scoliosis _____ >> >> None of the above _____ >> >> Comments? >> >> ---------------------------------------------------------------- >> >> --------------------------------------------------------------------- >> - >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > > -- > Steve in VT > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn