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definitely aaarghh!!! the pain left me gasping for breath. -------------------------------------------------- From: <[log in to unmask]> Sent: Friday, October 22, 2010 6:32 AM To: <[log in to unmask]> Subject: Re: Do you have Pain with Parkinson's? > I've done that, it's called a coxyx (unsure of spelling) but the word > you're > looking for is aaarrgh! > > Quoting Rayilyn Brown <[log in to unmask]>: > , it >> I left out balance problems and pain from falls. I have to think when I >> walk all the time to avoid a fall like the time I landed on the tip of my >> spine - eek can't think of name of it!! >> >> -------------------------------------------------- >> From: <[log in to unmask]> >> Sent: Wednesday, October 20, 2010 7:24 AM >> To: <[log in to unmask]> >> Subject: Re: Do you have Pain with Parkinson's? >> >> > Do you want to include case where PD is the indirect cause ? eg. pain >> > from >> > falls ? >> > >> > Quoting Peggy Willocks <[log in to unmask]>: >> > >> >> I am writing an article about pain with Parkinson's and need your >> >> help. >> >> Would >> >> >> >> as many of you as possible answer a few questions and return to me by >> >> November 1, 2010? You may cut and paste the info below online in your >> >> reply >> >> to this thread, or send me a Private Message with the informtion. >> >> Thank >> >> you - >> >> >> >> all information will be kept confidential, and your name will not be >> >> identified at >> >> all; not even with your responses: >> >> Peggy >> >> >> >> ---------cut below here and return or paste info in your >> >> reply ----------- >> >> >> >> >> >> PAIN QUESTIONNAIRE >> >> >> >> 1. Do you have pain that accompanies or is a result of your >> >> Parkinson's >> >> symptoms? >> >> >> >> ___ Yes ___ No >> >> >> >> 2. Where is your pain located? (Please be as descriptive as possible) >> >> >> >> For example: Headache - temple area or >> >> or writhing of lower leg muscles. >> >> >> >> 3. Does the pain get disabling enough that you take medication or do >> >> some >> >> other therapy for relief? >> >> >> >> ___ Yes ___ No >> >> If yes, give details; e.g. yes; I take 2 Tylenol for my headaches. Or >> >> yes; I >> >> >> >> have physical therapy twice a week. >> >> >> >> 4. How long have you been diagnosed with Parkinson's? >> >> ____ days ____ months ____ years >> >> >> >> 5. Do you believe, or has your doctor told you that the pain is due to >> >> your >> >> Parkinson's? >> >> >> >> ___ Yes ___ No >> >> >> >> Example, if yes: >> >> Yes - I have dystonia due to dyskinesia in my feet. >> >> >> >> 6. Do you believe or have you been told the pain is due to a >> >> medication >> >> you >> >> have taken long term for Parkinson's? >> >> >> >> ___ Yes ___ No >> >> >> >> 7. On a scale of 1-5 (with 5 being the most severe), how would you >> >> rate >> >> your >> >> >> >> pain most of the time? >> >> >> >> 1 ___ 2 ___ 3 ___ 4 ___ 5 ___ >> >> >> >> 8. Have you been told that you have or have you ever been diagnosed >> >> with >> >> any of the following (if associated with your site of pain) ? Check >> >> all >> >> that >> >> >> >> apply: >> >> >> >> Fibromyalgia ____ Dystonia ____ Severe dyskinesia ____ >> >> >> >> Degenerative disc disease or herniated disc _____ Arthritis _____ >> >> >> >> Spinal cord injury ____ Spinal stenosis ____ Scoliosis _____ >> >> >> >> None of the above _____ >> >> >> >> Comments? >> >> >> >> ---------------------------------------------------------------- >> >> >> >> ---------------------------------------------------------------------- >> >> To sign-off Parkinsn send a message to: >> >> mailto:[log in to unmask] >> >> In the body of the message put: signoff parkinsn >> >> >> > >> > >> > >> > >> > ---------------------------------------------- >> > This mail sent through http://www.ukonline.net >> > >> > ---------------------------------------------------------------------- >> > To sign-off Parkinsn send a message to: >> > mailto:[log in to unmask] >> > In the body of the message put: signoff parkinsn >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn >> > > > > > ---------------------------------------------- > This mail sent through http://www.ukonline.net > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn