Hi,
I have had 2 DBS procedures over the past 2 years, the first was
targetting the PPN area of the brain, objective to prevent me falling over,
the second was targetting the STN area of the brain, objective to reduce the
amount of meds I take and therefore reducing side effects, and reducing
tremor. Here I am nearly two years on and it is difficult to say whether or
not I am any better off than pre-ops.
At the moment the doctors have turned the PPN stimulator off because it
seemed to be interfering with the STN and preventing it from doing its job.
The only benefits that I have now are : tremor has gone and I am not
falling so often, although I think this due more to me being able to better
predict falling than before.
Current medication is;
Madopar 125mg twice a day
Ropinerole 12mg once a day
Best Wishes,
Nigel Harland
dx 1989, age now 56
----- Original Message -----
From: "Rayilyn Brown" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, December 01, 2010 5:44 PM
Subject: Re: Solo Sinemet
> Karol
>
> I don't take Sinemet at all. I had DBS in 2003 and that stopped the
> tremors. Sinemet only helped on the first dose. I've tried it many
> times. Took it when batteries died this summer so I could move a little,
> but doesn't seem to help at all now that my batteries have been replaced.
>
> DBS is great for tremor; doesn't help all that much for balance,
> bradykinesia, micrographia and makes voice worse, but its worth it to me.
> I had botox recently for leg dystonia but it doesn't seem to have helped.
> Some people with PD find botox helpful for dystonia.
>
> Ray
>
>
> From: Karol Klim
> Sent: Wednesday, December 01, 2010 3:55 AM
> To: [log in to unmask]
> Subject: Solo Sinemet
>
>
> Hello, I am 53 years of age and have been recently diagnosed with PD
> and am taking .75 of Sinemet and .75 of Mirapex. I would like to see how
> I would do with just taking Sinemet alone. I am concerned about the side
> effects of Mirapex, particularly the "sudden onset of sleep" possibility
> while driving. It sounds like you have had a lot of success with only
> taking Sinemet at a very low dosage. Is this true or have you had some
> tremors and rigidity? I would like to do the same, if possible. thanks
> for your help. Karol
>
>
>
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