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Betty I'm still making it with help 2 days a week on my own. As you know its not easy, but my goal is to stay out of a nursing home. Glad you are still independent, it gives me hope. Ray -------------------------------------------------- From: "gatewaytech support.com" <[log in to unmask]> Sent: Tuesday, November 30, 2010 6:10 AM To: <[log in to unmask]> Subject: Re: Sinemet for 30 years or more? > Well Rayilyn, I've been on Sinemet For 34 years. Sometimes it works > sometimes it don't as you probably know. I suffered from PD since i was > 25. It took drs, 5 years to diagnose it, so i was 30 when i started on > Sinemet. Then i had a palidotomy on one side in 1996. I was in a nursing > home for 5 years . From 2000 until 2005. then went back independent living > I do the best i can sometimes not too good then somtimes fair. I guess I'm > one of the lucky ones. > > ---------- Original Message ---------- > From: Rayilyn Brown <[log in to unmask]> > To: [log in to unmask] > Subject: Re: Sinemet for 30 years or more? > Date: Mon, 29 Nov 2010 18:46:29 -0700 > > Betty > > I thinking what you're asking is how long is Sinemet effective and I > couldn't find anything except the following Q and A which says it is > effective for many years. From what I have heard and read from being on > this List 10 years, 5 years is about average, but one person reported many > years and it could have been 30. I'm sure you know we are all different > with respect to response to drugs and rate of disease progression, so I > guess there is no one size fits all answer. It only really helped me for > one dose and I've tried it several times since. > > Ray > > Q. Is it true that taking Sinemet earlier in PD, decreases the > medication�s long term usefulness? Does this apply to higher doses > also? > A. This is a myth. Levodopa is highly effective for many years, and its > loss of efficacy has more to do with the progression of the disease than > with the duration of treatment. Not all symptoms of PD respond to > levodopa, and over time those symptoms become more prominent. Also, as > the disease progresses, people tend to develop more side-effects from > levodopa that can limit its use. > > > -------------------------------------------------------------------------------- > > From: gatewaytech support.com > > Sent: Monday, November 29, 2010 6:24 AM > To: [log in to unmask] > Subject: Senemet > > > Hi Rayilyn, I have been a member for a long time. But never really > emailed, i just read all the email from other people. I was wondering > have you heard of anyone being on SINEMET for more than 30 years??? Thank > you Betty Cannon > ____________________________________________________________ > Get Free Email with Video Mail & Video Chat! > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn