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Nigel I am sorry to learn that your DBS wasn't totally effective. Mine was wonderful for the first year, but now my PD is progressing. I am having symptoms like I had after having PD for 10 years. My gait is off and so is my balance. I hope I don't start falling again. I also have tremors and my feet move on their own. The DBS did not help my handwriting and sometimes I can't even read my own handwriting. Pam On Dec 2, 2010, at 5:54 AM, Nigel Harland wrote: > Hi, > I have had 2 DBS procedures over the past 2 years, the first was > targetting the PPN area of the brain, objective to prevent me > falling over, the second was targetting the STN area of the brain, > objective to reduce the amount of meds I take and therefore > reducing side effects, and reducing tremor. Here I am nearly two > years on and it is difficult to say whether or not I am any better > off than pre-ops. > At the moment the doctors have turned the PPN stimulator off > because it seemed to be interfering with the STN and preventing it > from doing its job. > The only benefits that I have now are : tremor has gone and I am > not falling so often, although I think this due more to me being > able to better predict falling than before. > Current medication is; > Madopar 125mg twice a day > Ropinerole 12mg once a day > > Best Wishes, > Nigel Harland > dx 1989, age now 56 > > > > ----- Original Message ----- From: "Rayilyn Brown" > <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, December 01, 2010 5:44 PM > Subject: Re: Solo Sinemet > > >> Karol >> >> I don't take Sinemet at all. I had DBS in 2003 and that stopped >> the tremors. Sinemet only helped on the first dose. I've tried >> it many times. Took it when batteries died this summer so I >> could move a little, but doesn't seem to help at all now that my >> batteries have been replaced. >> >> DBS is great for tremor; doesn't help all that much for balance, >> bradykinesia, micrographia and makes voice worse, but its worth it >> to me. I had botox recently for leg dystonia but it doesn't seem >> to have helped. Some people with PD find botox helpful for dystonia. >> >> Ray >> >> >> From: Karol Klim >> Sent: Wednesday, December 01, 2010 3:55 AM >> To: [log in to unmask] >> Subject: Solo Sinemet >> >> >> Hello, I am 53 years of age and have been recently diagnosed >> with PD and am taking .75 of Sinemet and .75 of Mirapex. I would >> like to see how I would do with just taking Sinemet alone. I am >> concerned about the side effects of Mirapex, particularly the >> "sudden onset of sleep" possibility while driving. It sounds >> like you have had a lot of success with only taking Sinemet at a >> very low dosage. Is this true or have you had some tremors and >> rigidity? I would like to do the same, if possible. thanks for >> your help. Karol >> >> >> >> --------------------------------------------------------------------- >> - >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn