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Nigel I know DBS really helps me move at all and stops tremors, but I can't find anything that really gives me a semblance of a normal life. It is hard to say if I am better with botox or supplements. I haven't had a bad fall for 2 years now but I really have to pay attention. -------------------------------------------------- From: "Nigel Harland" <[log in to unmask]> Sent: Thursday, December 02, 2010 3:54 AM To: <[log in to unmask]> Subject: DBS/STN & DBS/PPN > Hi, > I have had 2 DBS procedures over the past 2 years, the first was > targetting the PPN area of the brain, objective to prevent me falling > over, the second was targetting the STN area of the brain, objective to > reduce the amount of meds I take and therefore reducing side effects, and > reducing tremor. Here I am nearly two years on and it is difficult to say > whether or not I am any better off than pre-ops. > At the moment the doctors have turned the PPN stimulator off because it > seemed to be interfering with the STN and preventing it from doing its > job. > The only benefits that I have now are : tremor has gone and I am not > falling so often, although I think this due more to me being able to > better predict falling than before. > Current medication is; > Madopar 125mg twice a day > Ropinerole 12mg once a day > > Best Wishes, > Nigel Harland > dx 1989, age now 56 > > > > ----- Original Message ----- > From: "Rayilyn Brown" <[log in to unmask]> > To: <[log in to unmask]> > Sent: Wednesday, December 01, 2010 5:44 PM > Subject: Re: Solo Sinemet > > >> Karol >> >> I don't take Sinemet at all. I had DBS in 2003 and that stopped the >> tremors. Sinemet only helped on the first dose. I've tried it many >> times. Took it when batteries died this summer so I could move a >> little, but doesn't seem to help at all now that my batteries have been >> replaced. >> >> DBS is great for tremor; doesn't help all that much for balance, >> bradykinesia, micrographia and makes voice worse, but its worth it to me. >> I had botox recently for leg dystonia but it doesn't seem to have helped. >> Some people with PD find botox helpful for dystonia. >> >> Ray >> >> >> From: Karol Klim >> Sent: Wednesday, December 01, 2010 3:55 AM >> To: [log in to unmask] >> Subject: Solo Sinemet >> >> >> Hello, I am 53 years of age and have been recently diagnosed with PD >> and am taking .75 of Sinemet and .75 of Mirapex. I would like to see how >> I would do with just taking Sinemet alone. I am concerned about the side >> effects of Mirapex, particularly the "sudden onset of sleep" possibility >> while driving. It sounds like you have had a lot of success with only >> taking Sinemet at a very low dosage. Is this true or have you had some >> tremors and rigidity? I would like to do the same, if possible. thanks >> for your help. Karol >> >> >> >> ---------------------------------------------------------------------- >> To sign-off Parkinsn send a message to: >> mailto:[log in to unmask] >> In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn