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Can you give us some ideas on what crafts you do? I'm battling to keep my dad's brain active and busy. He gets bored or rather frustrated very quickly. Sent via my BlackBerry from Vodacom - let your email find you! -----Original Message----- From: "gatewaytech support.com" <[log in to unmask]> Sender: Parkinson's Information Exchange Network <[log in to unmask]> Date: Sat, 4 Dec 2010 18:27:18 To: <[log in to unmask]> Reply-To: Parkinson's Information Exchange Network <[log in to unmask]> Subject: Re: Sinemet for 30 years or more? Yes, you have make yourself keep going. Keeping your brain active as well keping your hands busy doing whatever you can do. one thing i do is a lot of crafts ---------- Original Message ---------- From: Rayilyn Brown <[log in to unmask]> To: [log in to unmask] Subject: Re: Sinemet for 30 years or more? Date: Thu, 2 Dec 2010 19:28:16 -0700 Betty I'm still making it with help 2 days a week on my own. As you know its not easy, but my goal is to stay out of a nursing home. Glad you are still independent, it gives me hope. Ray -------------------------------------------------- From: "gatewaytech support.com" <[log in to unmask]> Sent: Tuesday, November 30, 2010 6:10 AM To: <[log in to unmask]> Subject: Re: Sinemet for 30 years or more? > Well Rayilyn, I've been on Sinemet For 34 years. Sometimes it works > sometimes it don't as you probably know. I suffered from PD since i was > 25. It took drs, 5 years to diagnose it, so i was 30 when i started on > Sinemet. Then i had a palidotomy on one side in 1996. I was in a nursing > home for 5 years . From 2000 until 2005. then went back independent living > I do the best i can sometimes not too good then somtimes fair. I guess I'm > one of the lucky ones. > > ---------- Original Message ---------- > From: Rayilyn Brown <[log in to unmask]> > To: [log in to unmask] > Subject: Re: Sinemet for 30 years or more? > Date: Mon, 29 Nov 2010 18:46:29 -0700 > > Betty > > I thinking what you're asking is how long is Sinemet effective and I > couldn't find anything except the following Q and A which says it is > effective for many years. From what I have heard and read from being on > this List 10 years, 5 years is about average, but one person reported many > years and it could have been 30. I'm sure you know we are all different > with respect to response to drugs and rate of disease progression, so I > guess there is no one size fits all answer. It only really helped me for > one dose and I've tried it several times since. > > Ray > > Q. Is it true that taking Sinemet earlier in PD, decreases the > medication�s long term usefulness? Does this apply to higher doses > also? > A. This is a myth. Levodopa is highly effective for many years, and its > loss of efficacy has more to do with the progression of the disease than > with the duration of treatment. Not all symptoms of PD respond to > levodopa, and over time those symptoms become more prominent. Also, as > the disease progresses, people tend to develop more side-effects from > levodopa that can limit its use. > > > -------------------------------------------------------------------------------- > > From: gatewaytech support.com > > Sent: Monday, November 29, 2010 6:24 AM > To: [log in to unmask] > Subject: Senemet > > > Hi Rayilyn, I have been a member for a long time. But never really > emailed, i just read all the email from other people. I was wondering > have you heard of anyone being on SINEMET for more than 30 years??? Thank > you Betty Cannon >____________________________________________________________ > Get Free Email with Video Mail & Video Chat! > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn > > ---------------------------------------------------------------------- > To sign-off Parkinsn send a message to: > mailto:[log in to unmask] > In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn ---------------------------------------------------------------------- To sign-off Parkinsn send a message to: mailto:[log in to unmask] In the body of the message put: signoff parkinsn